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Piper Beatty

New York, New York
I am a 27 year old CFer living it up and trying to stay healthy in New York City. I moved here in 2004 to go to law school after a lot of moving around (Colorado, Texas, Boston, Atlanta, and even a stint in England). After graduating from Columbia, I spent a couple of years working full time as... Full Bio
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Leaky by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis Hi there, lovely readers. I've had a lot of you ask via the blog or FB or messages how I'm feeling lately, and I guess the best answer I can give you right now is that I' ... Read on »
On Looking Forward, Looking Back by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis **Some reader discretion advised -- tough CF topics ahead.** It happened about a week ago. I was just sitting here in my snug little hospital room, minding my own busi ... Read on »
On Waiting by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis Well hello again, beautiful people. So as most of you probably know by now, I received a very special gift this Christmas -- December 25, 2013 -- in the form of sparkling ... Read on »
An Introduction by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis Dear Readers, Followers, Lurkers, Commentors, Visitors, and All-Around Beautiful People First of all, on behalf of Piper, Sampson Bear the Dog, Piper's Family, and everyone ... Read on »
'Tis the Season by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis I originally posted this as a status update on my personal Facebook page as a way to respectfully chime in to one of my favorite seasonal traditions: the great flu shot deba ... Read on »
The S Word by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis I believe in the power of words. To me -- as a lawyer, as a blogger, as a speaker, certainly as an empowered patient, and even just as a person -- words have always been ... Read on »
Just Breathe by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis A few years ago I had a minor, unsedated procedure to remove an infected port-a-cath. At the time I remember lying on an elevated platform in my vascular surgeon's office wi ... Read on »
An Honest Reflection by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis Well hello there friends, loved ones, and beautiful strangers: I am writing this post because I looked in a mirror today. Okay, to be honest, I look in the mirror eve ... Read on »
The 10 Commandments of Life with CF (or Anything Else) by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis Well, this was quite a week. Beyond flying to NYC for transplant clinic and a meeting with my surgeon (both went well, by the way) and having the small and thankfully supe ... Read on »
On Tubes and Testing by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis So some of you beautiful breathheads have been asking about something I've mentioned a couple of times in recent posts, at least in passing. Namely, the impedance study. Man ... Read on »
On Seeing Things Clearly by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis When I was about 15 or 16, I was told I needed glasses for most distance seeing activities -- things like reading a blackboard, riding my horses, or driving a car. In the co ... Read on »
The Blame Game by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis The other day, over a sunny outdoor brunch with my boyfriend, I did something I rarely allow myself to do, at least out loud. We were sitting on a patio, sipping coffee and ... Read on »
Starting Over (Yet Again) by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis Okay guys, so where were we? I feel like so much has changed in the slightly over a month or so since I last wrote, back when I was still in the hospital for my Campath i ... Read on »
My Name is Piper... by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis Okay, guys, confession time I'm kind of a druggie. Actually, I think the term my doctor prefers to use is "compliant patient," but come on -- let's call a spade a spade. ... Read on »
On the War(Cam)path by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis So in case you haven't heard, I'm back in the hospital. Before anyone freaks out, please know that I am not "sick," at least not in the traditional, infectious sense. I d ... Read on »
Milestones by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis Today marks 3 years from the day my beloved Donor Bob gave me the gift of life in the form of his precious lungs. It marks 3 years of all sorts of wonderful, from turning 30 ... Read on »
Community Faces: Julie Wagoner by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis One of the exciting things about the Community Faces Project is the number of people without CF who have written posts. Parents, siblings, spouses/partners, family members, ... Read on »
On Playing the Tiles by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis It's the end of May, and also the end of National Cystic Fibrosis Awareness Month here in the states, but don't worry: we still have lots of Community Faces guest blogs to p ... Read on »
Community Faces: Amanda by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis Some of you might have guessed that I'm a big big super fan of the CF community. Despite a lot of volunteer and advocacy work with The Cystic Fibrosis Foundation when I w ... Read on »
Community Faces: Jessi by Piper Beatty Posted in: Blog Posts in Cystic Fibrosis People are always asking me whether I consider myself "sick." The truth of the matter is that, most of the time anyway, I don't think of myself in terms of my illness ... Read on »