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Vulvodynia Vulvodynia Vulvodynia Vulvodynia

Posted Oct 21 2009 7:07pm

Well, today was an "ow" day. The burning is back to where it was in the beginnning. I hurt at work and at home too. Went out to dinner with some friends and I had to sit in a booth seat with my legs tucked under me. It started stinging at dinner too.

I am doing the medication route right now. I tried one session of PT and I hurt so badly afterwards that I didn't think I could take it. I just don't want anything touching the area.

So, I have cancelled my follow-up appt with Dr. Goldstein...the V specialist

and am continuing to try different meds while seeing the pain specialist.

If I knew that PT would work, I'd do it, but I just can't deal with more pain for no reason...

I don't want any more doctors touching me there- it's like i'm getting a phobia- I've lost count of how many times I've dealt with that Q-tip test.

Just thinking about it brings about great fear in me now...

I'd rather try swallowing pills at this stage. Another gyn appointment that will leave me in worse pain for several weeks- no thank you.

I don't have the stamina for that.

I will keep trying with the meds, and if that route won't work, I shall see Goldstein again and talk to him about the surgery...

I am trying to be patient and positive... a difficult thing after a year of no relief...

well, i must say that I did get some relief with Cymbalta, and so have many other women with V... so, if you are reading this it's definitely a good med to try.  Unfortunately, I could not tolerate the side effects of insomnia and hypomania,  but that's just me- everyone responds differently...

I try to live my days one by one... I try to stay hopeful... so many days,  I'm on the verge of tears at some point in the day...

I guess that's progress, since I was crying nonstop for many months- crying about this diagnosis and the limits it's putting on my life, crying for the bf who abandoned me and left me to deal with this on my own...

It's been overwhelming...

1800 mg of Gabapentin now... am tolerating it much better now... much less sedating than before... I am just not noticing any pain relief yet. :(

I feel like I must accept that my life has to be on hold for a while... i don't know how long...i am thankful that i can still work... social activities can be a chore though...

well, i am off to bed and my meditation cd for vulvodynia patients...

i am doing the best i can... i don't know what else to do?

this blog is for my healing and to spread the word about this disorder and bring a voice to the the physical and emotional effects of living with Vulvodynia...

if anyone with media connections is reading, i'd be happy to do anything to help get some attention to this disorder...

is this the right site for that?

idk

that is the one thing that keeps me going- the drive to get out the word and support other women with this... to let them know that their feelings are normal and this pain is not in their heads...

is there a support site for single women dealing with VV...?

I feel like I'm talking to the wind sometimes...

feel free to post any ideas, comments, etc...

my email address is miriamcdb@yahoo.com

 

 

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