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Ultrasound & Autism finalization

Posted Jul 11 2009 12:12am
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Today we went to the hospital for my KUB (Kidneys Ureters Bladder) ultrasound. We felt like employees arriving at 9:30 AM. After the ultrasound we went up for lunch and I had a smoothie. We then after that went to the Autism diagnostic finalization session. We spent about 45 minutes going through the results and it is final, I am CLASSIC AUTISM – HIGH FUNCTIONING AUTISM

This is very vindicating for me and my mom because now we have a final diagnosis that we can use to get proper therapies, help, and support for my autism. And also it can be globally recognized that I am autistic and have the paper to prove it!

Orders list is updated to reflect these two things, a new order for a Nephrology visit of unknown scheduling will be created.

The big bottom line here is I am OFFICIALLY DIAGNOSED AS HIGH FUNCTIONING CLASSIC AUTISM

  • Urodynamic Ultrasound <DONE>
  • Autism / Neurodiagnostic Results <DONE>
  • Priority Rehab Physician Visit <KNEE CT RESULTS & OTHER> (Wednesday July 15th 3:00 PM)
  • Occupational Therapy eval (monitor disease progression) <ACTIVE> (1:00 PM Tuesday July 14th)
  • New wheelchair (evaluation / ordering) <ACTIVE> (2:00 PM Thursday July 16th)
  • Cardiology follow up <ACTIVE> (2:00 PM August 26th)
  • Pulmonary follow up <ACTIVE> (3:40 PM August 26th)
  • CT head & spine w/o contrast and with contrast (repeat due to 1 year passing since last CT series) (IP/OP) <WAIT SCHEDULING>
  • Pulse Oximeter (ordered by pulmonary) <ACTIVE> [JUSTIFICATION PEND]
  • ETCO2 monitor (ordered by pulmonary) <ACTIVE>[JUSTIFICATION PEND]
  • Muscle Biopsy – See if there is a muscular dystrophy or other disease directly affecting the muscle such as progressive rhabdmyolysis. (Live – To be scheduled) (OP / IP at doctors discretion)<WAIT SCHEDULING>
  • Toxicology panels (drug & standard) – See if disease caused by toxic mutagenic agent (OP) <INACTIVE>[WAIT FOR BETTER INSURANCE]
  • ABGs draw (IP)<WAIT SCHEDULING>
  • Echocardiogram (repeat due to 1 year passing since last ECHO) (IP)<WAIT SCHEDULING>

are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.

  • Pulmonary Functions Test (monitor respiratory status) <WAIT 3 MONTHS.. OCT-NOV 09)
  • Nephrology follow up (monitor kidneys and urodynamics in more detail) <WAIT SCHEDULING>
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