Lets try this again shall we… Tomorrow / Today at 10:45 AM is my trach change. I will be in addition to just the trach change be having multiple laboratory tests done including and not limited to a bronchial wash / sample, a sinus wash / sample, and a throat laryngoscopy with sample. I will have news and everything tomorrow provided I am not too bent on the fentanyl.
[start rant] Your probably wondering why I have a very crappy remake of the well known logo from the Medicare.gov website. Well some of you call it MedicDon’tCare or Medicrap, I personally call it a bunch of things including Medicareless. Medicaid on the other hand is MedicDon’tAidMe Medicaidless. Your probably wondering and saying wait Alin, they paid for a lot of your stuff, your ventilators, your oxygen concentrator, some wheelchair parts. Yes they did is the key word. Now we are in a really shitty situation, excuse the language in the following content. I am trying to get some stuff for my power wheelchair (Herein PWR W/C), no not my IRIS that I just got on eBay though getting the items for that will be just as big of a bitch if not a bigger bitch but damn am I thankful to be getting that IRIS because the head array on my PWR W/C probably ain’t happening for some time if at all, so that IRIS is going to be getting a lot of use, just needs some seating modifications, which will be a bitch to get, thank you Medicare, THANK YOU SO MUCH [/sarcasm]. On my PWR W/C the batteries are not performing as they should, the tilt actuator needs to be replaced because it is breaking, almost totally broken and I need a new switch to operate my Permolock system in the car. In addition to all of those items this is where medicare is being downright SHIT. They don’t care about my doctor or my letters of medical necessity anymore, no matter how damn detailed the thing is. They expect to see doctors progress notes over the course of 4-6 months. WHAT!?!!? you bastards expect me to now see my damn doctor every 1-2 months to evaluate a DEGENERATIVE, PROGRESSIVE condition? REALLY… Sit in a waiting room for almost an hour 3-4 times just to see the doctor for 15 minutes to have her write a ‘progress note’ in my damn chart? This is a load of bullshit. And this load of BULLSHIT is completely blocking me from getting a head array, attendant joystick, and customized sub occipital support on my headrest to accommodate my increased neck pain. But am I going to get any of it NO. The fact they want doctors charts is ludicrous at best. I have Never seen Medicare require months of doctors charts to process a claim before. I don’t know about you but something about OBAMACARE smells really FISHY. Getting a doctor to write a letter of medical necessity is hard enough, but now requiring progress notes for something as mundane as a SUB OCCIPIAL PAD is insane. Specialty control device running about $5000-7000 fine, I can see some logic in that. But a damn sub occpital pad. I FAIL TO SEE YOUR LOGIC MEDICARE. So here I am with a PWR W/C that has a rapidly deteriorating tilt actuator, funky batteries, and a headrest that needs modification. And to top it all off I am slated to receive an IRIS that needs a total seating retrofitting, am I expecting MEDICRAP to pay a damn dime without being fought for it… NO. Do I feel that we the people with disabilities should be fighting tooth and nail for such mundane things like a damn headrest or seating system NO. In all honesty the head array shouldn’t even be questioned. A doctor with a valid license who specializes in rehabilitation prescribed the damn thing made a letter of medical necessity and signed the letter. That is where it should all end and the array / whatever equipment named by that doctor simply be PAID for and ORDERED. None of this pre authorization need to review medical records BULLSHIT. I rest my case for now…[end rant]
This all being said, Summer 2013 expect me to be planning a trip to Washington D.C to protest for better coverage on capital hill. Let’s put all of congress in wheelchair with parts that don’t fit them or are breaking or that don’t meet their needs, then lets watch how fast laws change!
I will return with more news and maybe a crappy video about Medicare after my trach change…
ALL THIS CRAP BEING SAID… MONEY IS NEEDED ASAP TO FUND THE HEAD ARRAY, AND OTHER EXPENSES THAT MEDICARE WILL NOT COVER. IMMEDIATELY PROCEED TO SHARING THIS WEBSITE VIRALLY AND OR DONATING IF YOU CAN AFFORD IT. SLAP THE DONATE BUTTON, SLAP THE FUNDRAISING & GIFT PANEL TO MAKE A DIRECTED DONATION OR JUST SLAP THAT BIG DONATE BUTTON AL’ A PAYPAL TO HELP OUT BEFORE I LOSE MY MIND… Oh wait, I ALREADY LOST THAT. BUT STILL, PLEASE HELP