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Spoke to pulmonary, tracheostomy not needed, oximetry to be announced

Posted Jul 03 2009 2:58pm
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Good news everyone!!! My Pulmonary Functions Test (PFT) results were read today and I DO NOT need a tracheostomy and ventilator yet. We still need to stay on top of my respiratory status and continue to closely monitor my condition, hence I have CREATED a PFT order for October-November. The oximeter / capnometer (ETCO2 monitor) have been upgraded in priority as part of the respiratory monitoring project of 2009 and should be ordered in the next month or so.

Again, I am quite glad and happy to announce that I do NOT need a tracheostomy and ventilator at this time.

  • CT knees w/o contrast and with contrast? <ACTIVE> (1:00 PM Monday July 6)
  • Urology visit <ACTIVE> (2:30 PM Tuesday July 7th)
  • Occupational Therapy eval (monitor disease progression) <ACTIVE> (1:00 PM Tuesday July 14th)
  • New wheelchair (evaluation / ordering) <ACTIVE> (2:00 PM Thursday July 16th)
  • CT head & spine w/o contrast and with contrast (repeat due to 1 year passing since last CT series) (IP/OP) <WAIT SCHEDULING>
  • Pulse Oximeter (ordered by pulmonary) <ACTIVE> [JUSTIFICATION PEND]
  • ETCO2 monitor (ordered by pulmonary) <ACTIVE>[JUSTIFICATION PEND]
  • Muscle Biopsy – See if there is a muscular dystrophy or other disease directly affecting the muscle such as progressive rhabdmyolysis. (Live – To be scheduled) (OP / IP at doctors discretion)<WAIT SCHEDULING>
  • Toxicology panels (drug & standard) – See if disease caused by toxic mutagenic agent (OP) <INACTIVE>[WAIT FOR BETTER INSURANCE]
  • Urodynamics study (under anesthesia or neuromuscular blockade) (repeat due to question of suprapubic catheter) (IP)<MAY BE DROPPED>
  • Echocardiogram (repeat due to 1 year passing since last ECHO) (IP)<WAIT SCHEDULING>

are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.

  • Pulmonary Functions Test (monitor respiratory status) <WAIT 3 MONTHS.. OCT-NOV 09)
  • Tracheostomy & Ventilator, earlier the better. (IP) <KILLED REASON: WAY TOO EARLY. ESPECIALLY WITH HOW WELL MONITORED I AM>
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