Pulmonary Functions Test done, near 20% drop in lung function, orders update
Posted Oct 15 2009 10:02pm
my vmax 229
Yesterday (technically, dammit sleep patterns and backlog from sleep study) we went for my Pulmonary Functions Test. This test is vital in the big current decision of deciding whether I am ready to tracheostomy & ventilator or tracheostomy and wait on the ventilator or do nothing. Honest opinion here I am expecting a tracheostomy at bare minimum and have a few chips on the table for the ventilator, especially after seeing yesterdays results. My FVC % went down from %116 to %96, you say okay big deal thats still within normal range, the big issue here is that is a 20% drop in 3 months, therefore if we project another 20% drop or more in 3 more months we hit “warning” level of %75 in which BiPap or a tracheostomy and ventilator are prescribed.
Note: I take no responsibility for factual errors, this was all taken off of a raw data non doctor interpreted report and therefore may have a possible chance of being incorrect.
The medical orders list has been updated to reflect the PFTs being done.
I took some behind the scenes pictures so click it to go to them!
*Yawn and more yawn* goodnight all.
Pulmonary Functions Test (monitor respiratory status / evaluate for trach) <DONE>
Cardiac Monitor <IN PROGRESS>
ETCO2 Monitor <PENDING FIGHT WITH INSURANCE… YAY!)
we are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.
Pulmonary appointment <WAIT SCHEDULING>
Glasses <WAIT INSURANCE / MONEY>
Endoscopy (ulcer in stomach possibly) <Pending requisition>
New Wheelchair <PEND INSURANCE APPROVAL>
Pacemaker / ICD <PENDING ORDER>
Tracheostomy <PENDING ORDER>
Spinal X-Ray Series <REORDERED FEB 2010>
Pulmonary Functions Test <REORDERED FEB 2010>
Breast surgery visit <PENDING SCHEDULING>
Muscle Biopsy – See if there is a muscular dystrophy or other disease directly affecting the muscle such as progressive rhabdmyolysis. (INACTIVE) (OP / IP at doctors discretion)<PEND SCHEDULING>
Toxicology panels (drug & standard) – See if disease caused by toxic mutagenic agent (OP) <INACTIVE>[WAIT FOR BETTER INSURANCE]