I got a CrashBox that will be SO much easier to get around and use in an emergency. Just like a hospital crash cart it has labeled drawers and emergency drugs. It’s actually a Plano tackle box! Just shows you what one can do with such an ordinary item
One hot me in the sun
After we came home from Target, we went outside, and the sun was blazing warm and on top of that we did the Burning Bowl 2012 Staging. Staging is the practice run to see how things will work. Staging was important as this year I will be conducting everything from in my wheelchair. The staging went perfectly. It was so warm in my wheelchair and so comfortable too. I can’t wait to do Burning Bowl; it will be probably Sunday the 22nd. Unless otherwise, noted. Please E-Mail all burn requests via my website’s contact me feature or direct E-Mail if you have my direct E-Mail.
Me and Shawn
Shawn a friend of mine who I have known for a very long time came over on Monday. I made him scrambled eggs, and he enjoyed them and then we played PS3 and obviously enjoyed outselves. I love having a good time with him we both scream laugh and smile with each other. That’s what life is about. Having fun with your friends. Lots of hugs out for my buddy Shawn. We are hopefully going to have a regular game day at my house for Shawn to come over and play PS3 with me.
The Vest System and Vests
Well my Vest machine broke down Wednesday, and I got a new one on Thursday. I think I am going to go to sleep on my new machine. I was really happy with how fast they sent the replacement unit and they even told me how to run it for 8 hours straight through! That’s cool!!! That’s something I have always wanted to do with it is run it for long durations on myself as it is quite comforting.
Emergency Room Sign
There really isn’t a picture to go with this so an emergency sign works. SPASMS. SPASMS, and more *$@&ing spasms. My shoulder scapula’s have been giving me hell yesterday and today being extremely tight. They woke me up out of a calm sleep, and I had to take 40MG of Baclofen! Either my pump is failing, or my spasticity is getting worse rapidly and I am in a severe rett regression. We will find out, but Dr Katz my GP is writing me up a script for 60, 20MG tablets of Baclofen so I have a lot of Baclofen in the house to stabilize myself. If I am still considering myself as Unstable on Monday, I am to report to the E.R at Lutheran General and present as PUMP FAILURE.
Greg just through the door
Today, I will be going out for lunch at 1:30 PM with Greg. My buddy shown above. He’s awesome to be with, and he’s an awesome friend to have. I am so lucky to have Greg in my life, so lucky to have all of my lovely friends. Hugs to all of you, you know who the hell you are!!! Anyway I will take some special pictures of me and Greg today at Jason’s Deli. I am going to be loaded with Baclofen and probably drooling like Chris
Chris giving a smile goodbye
With, how much slobbering I’ll be doing maybe I and Chris can have a competition. Obviously, Chris wins at the being slobbery And remaining totally huggable and cute at the same time. Chris is the kind of guy who you can’t go without hugging. He has a very special personality with him. And as all of my friends he is very special to me! So…
Now for the video portion of the post