Code blue cleared, infected trach site / swelling & resume the C-Collar, Glucose crashes and CGM
Posted Mar 14 2010 12:00am
We left the house around 9:00 am and got to the ER at 9:45 and we parked our “rig” in an ambulance bay and ran in and registered. We were seen by my ENT doctor B within 10 minutes in a private “family room” area so as to not get the actual ER involved and get totally different billing apparently, and no ER copay, schweet! Under the table ENT emergency visits For The Win (FTW!). He took out a bronchoscope and scoped me and said I have an inflammation infection, he took some pictures I think. I am on strong antibiotics already but he wants me on a pain reliever and anti inflammatory drug. So we will use raw Ibuprofen for that. I will be doing daily tracking pictures. We are already on a suitable antibiotic Bactrim DS twice a day for my respiratory infection which will work on this. We have to work on the skin infection around the tracheostomy site with special ointment. There is swelling in my trachea that is impairing the cuff from inflating without impacting my trachea and causing pain, normally it would just tighten up against the trachea, but now since we have swelling on two sides the cuff tries to push at those even though it’s a low pressure cuff. Thusly I might have to go cuffless for a few days (constantly deflated)
I am now using the C-Collar again but we made a modification to stop it from making sores on my collar bone. The mod involves vent filters, yeah those thick ass sand / tan colored filters being taped to the collar in the problem area and then at the exact position on the opposite side to re-balance the collar. The reason we need to do this is we need intensive healing at night.
You can bet I will be talking to my doctors about getting a CGM soon (Continuous Glucose Monitor) like the Minimed Guardian system just about 10 minutes ago or so I came out of a huge crash just enough to do a finger stick and got a 90 with two arrows going down, pretty much a panic get the sugar level, when you see that amount and two arrows you need to do something, fast!! The fact I was totally unaware of the crash and in and out of glucose comaland is extremely scary, there is only one device that could help me prevent crashes and highs and that device is a CGM system. In the event I start getting too low at a higher level it will send a piercing alarm to alert “ONCOMING CRASH” Or if I am already too low it will sound the alarm. It also sounds for highs.