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A Word From Ellen...and Max

Posted Mar 06 2010 9:00am

Today's guest post is written by Ellen, author of the hilariously funny special needs parenting blog To The Max. Max is a seven-year-old boy with cerebral palsy who is madly in love with the color purple and the new noise on his DynaVox. Max's sister, Sabrina, also joins in the fun. You may remember my interview with Ellen, and I was so excited to have her guest post! Thank you, Ellen! And now...without further ado...

Hi, everyone. I was so psyched for this opportunity to guest post. Because Erin gives me H-O-P-E. Back when she first found my blog, I was floored by her smarts, her sense of humor, her determination, her abilities. She gave me hope for my little boy, Max, who’s seven and has cerebral palsy.

Hope wasn’t always an easy thing to come by. Back when Max was born, the doctors didn’t give me a whole lot of it. Max had a stroke at birth and they were downright grim about his future. I struggled to find some hope to cling to, because I knew my baby needed me to have hope for him and his future. If I didn’t—me, his mother—who would? I had to be his champion, no matter how bleak things seemed.

Then hope started trickling in: As we found doctors and therapists who believed in Max’s potential. As Max made progress. As I stopped mourning what had happened to Max and started looking at the reality of him—a cheerful, good-natured, loving, determined, bright little boy. With good hair and fluttery lashes, no less.

Today, all I have to do is glance at Max’s happy face and I am filled with hope. He’s accomplished so much, and every single time he does something new it breeds more hope. I’ve never forgotten that dark place where hope was barely a glimmer—and I’m grateful for how far I’ve come.

What gives you hope for your child?

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