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Phoenix

On April 30, 2008 our lives were changed forever! Our beautiful son Phoenix was born with Cystic Fibrosis! It's been a rollercoaster ride of ups and downs, but along the way we've learned about fighting for tomorrow! Phoenix may have Cystic fibrosis but Cystic Fibrosis will never have Phoenix!
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The Big 5! by Phoenix Posted in: Blog Posts in Cystic Fibrosis Well what a year it has been! We have been through so much and life keeps on changing! Our amazing little man turned 5 years old! Of course we celebrated in ... Read on »
The Big 5! by Phoenix Posted in: Blog Posts in Cystic Fibrosis Well what a year it has been! We have been through so much and life keeps on changing! Our amazing little man turned 5 years old! Of course we cel ... Read on »
A year of things to be thankful for! by Phoenix Posted in: Blog Posts in Cystic Fibrosis 2012 Jingle Bell Ride! This was Phoenix's Ride! 2012 Jingle Bell Ride! Santa Phoenix ready to collect toys! Big Broth ... Read on »
A year of things to be thankful for! by Phoenix Posted in: Blog Posts in Cystic Fibrosis 2012 Jingle Bell Ride! This was Phoenix's Ride! 2012 Jingle Bell Ride! Santa Phoenix ready to collect toys! ... Read on »
What a crazy time it has been! by Phoenix Posted in: Blog Posts in Cystic Fibrosis Well life comes and goes! We continue to move forward and face things head on. When people hear CF they always ask if Phoenix is affected more by his l ... Read on »
What a crazy time it has been! by Phoenix Posted in: Blog Posts in Cystic Fibrosis Well life comes and goes! We continue to move forward and face things head on. When people hear CF they always ask if Phoenix is affect ... Read on »
Just another day by Phoenix Posted in: Blog Posts in Cystic Fibrosis Well updating again has been few and far between. So here is a quick and crazy update. Phoenix was life flighted to CMH on June 28 and has been there since then. He has und ... Read on »
Just another day by Phoenix Posted in: Blog Posts in Cystic Fibrosis Well updating again has been few and far between. So here is a quick and crazy update. Phoenix was life flighted to CMH on June 28 and has been there since then. He has u ... Read on »
Admission by Phoenix Posted in: Blog Posts in Cystic Fibrosis Well little Phenny was brought to CMH by helicopter last night! He is stable and we are seeing some improvement. He is scheduled for surgery on Tuesday, we hope t ... Read on »
Admission by Phoenix Posted in: Blog Posts in Cystic Fibrosis Well little Phenny was brought to CMH by helicopter last night! He is stable and we are seeing some improvement. He is scheduled for surgery on Tuesday, we ho ... Read on »
Time....... by Phoenix Posted in: Blog Posts in Cystic Fibrosis Well as time goes on it seems that the days get shorter and the list of things that need to be completed gets longer! I apologize for the lack of updates and after the last ... Read on »
Time....... by Phoenix Posted in: Blog Posts in Cystic Fibrosis Well as time goes on it seems that the days get shorter and the list of things that need to be completed gets longer! I apologize for the lack of updates and after the la ... Read on »
Another day, another........ by Phoenix Posted in: Blog Posts in Cystic Fibrosis Well it was another day with more tests and not anymore answers. Phoenix has lost some more weight, but has a PICC line in and is getting TPN and Lipids. He ... Read on »
Another day, another........ by Phoenix Posted in: Blog Posts in Cystic Fibrosis Well it was another day with more tests and not anymore answers. Phoenix has lost some more weight, but has a PICC line in and is getting TPN and ... Read on »
The plan by Phoenix Posted in: Blog Posts in Cystic Fibrosis Well for today they have already started the upper GI process. They hope to also get an MRI or MRE done. It's the end of the current residents 30 days on this service so w ... Read on »
The plan by Phoenix Posted in: Blog Posts in Cystic Fibrosis Well for today they have already started the upper GI process. They hope to also get an MRI or MRE done. It's the end of the current residents 30 days on this service so ... Read on »
Not sure what..... by Phoenix Posted in: Blog Posts in Cystic Fibrosis After a day like today, I am not sure where to even start. It was not the day to celebrate a birthday, and as hard as we tried it was not a day that had many smiles or celeb ... Read on »
Celebrating from the hospital by Phoenix Posted in: Blog Posts in Cystic Fibrosis Well little man informed us that he wanted to cancel his birthday and just wait until he got home. As a mom this broke my heart to know how much being here has upset ... Read on »
Not sure what..... by Phoenix Posted in: Blog Posts in Cystic Fibrosis After a day like today, I am not sure where to even start. It was not the day to celebrate a birthday, and as hard as we tried it was not a day that had many smiles or cele ... Read on »
Hospital Update by Phoenix Posted in: Blog Posts in Cystic Fibrosis As the days go by little man struggles with the days at the hospital. He is ready to be home and feeling better. Monday is his birthday and he is not happy about hav ... Read on »