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peytonsparents

California
My name is Peyton and I am a little girl with a lot of attitude! I was born with a rare genetic condition called Nager Syndrome. My blog is my way of telling my family and friends about life with this complex syndrome. I have a tracheostomy, a g tube, severe bilateral hearing loss, aortic valve... Full Bio
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Thursday, November 15th, 2012 by peytonsparents Posted in: Blog Posts in Children's Health If you have read my blog over the years you know all about Signing Times.  Since moving to Utah a few years ago I have hoped to run into Rachel, Leah and Alex ... Read on »
Tuesday, June 19th, 2012 by peytonsparents Posted in: Blog Posts in Children's Health A note from Mommy Today was the the much anticipated appointment with genetics.  Thanks to Dr Norlin for working with Dr Carey to get us in before February 2013 ... Read on »
Monday, May 21st, 2012 by peytonsparents Posted in: Blog Posts in Children's Health It's that time of year again.  The Wasatch Adventure to raise money for Hope Kids is just a few months away. Please join me in supporting me and all the othe ... Read on »
Saturday, May 26th, 2012 by peytonsparents Posted in: Blog Posts in Children's Health It's that time of year again.  The Wasatch Adventure to raise money for Hope Kids is just a few months away. Please join me in supporting me and all the othe ... Read on »
Friday, May 4th, 2012 by peytonsparents Posted in: Blog Posts in Children's Health Today someone passed away who changed the lives of thousands of children across the United States.  Because of her and the determination of her parents, Peyton was able to ... Read on »
Monday, March 5th, 2012 by peytonsparents Posted in: Blog Posts in Children's Health With the Lorax on Friday night and the zoo yesterday you would think I was ready for a quiet night at home but the weekend was capped off by getting to ... Read on »
Friday, March 2nd, 2012 by peytonsparents Posted in: Blog Posts in Children's Health What a great day!  I had another great night's sleep and when I woke up at 7:30, Mommy held her breath to see if the vomiting would start back up but it never did.  I ... Read on »
Thursday, March 1st, 2012 by peytonsparents Posted in: Blog Posts in Children's Health So although my surgery was not scheduled until April 16th, Dr Morales had a cancellation and was able to get me in today.  Wednesday after ... Read on »
Tuesday, February 14th, 2012 by peytonsparents Posted in: Blog Posts in Children's Health A note from Mommy If you have followed the blog you have seen how much we appreciate Hope Kids for all they do to bring joy into the lives of kids like Peyton.  For the ... Read on »
Wednesday, Feburary 1st, 2012 by peytonsparents Posted in: Blog Posts in Children's Health Guess who showed up via email, blog and Facebook today?  I kicked off the Patient Stories today leading up to the World RARE Disease Day! PATIENT STORIES OF HOPE AN ... Read on »
Sunday, January 29th, 2012 by peytonsparents Posted in: Blog Posts in Children's Health World RARE Disease Day is February 29th - 30 days from today.  Why is the number 30 so significant?  30% of children with a rare disease will die by the age of 5.  ... Read on »
Wednesday, January 18th, 2012 by peytonsparents Posted in: Blog Posts in Children's Health It's only been a week since we first went to see the otters, but Colin hadn't been to see them yet so Jackson and I were eager to be his tour gui ... Read on »
Tuesday, January 17th, 2012 by peytonsparents Posted in: Blog Posts in Children's Health Before Dr. Morales can decide which surgery to do next - my joints or another jaw distraction - he needed an updated CT scan.  After rescheduling it multiple times du ... Read on »
Monday, January 9th, 2012 by peytonsparents Posted in: Blog Posts in Children's Health I have been on pins and needles waiting for the Living Planet Aquarium to unveil it's newest additions - the river otters!  They officially opened up on Thursday but ... Read on »
Saturday, January 7th, 2012 by peytonsparents Posted in: Blog Posts in Children's Health A note from Mommy I know I have blogged about this in the past to some extent but it is still something I am not quite sure how to handle. On Saturday, Peyton ... Read on »
Tuesday, January 3rd, 2012 by peytonsparents Posted in: Blog Posts in Children's Health A picture of what is to come...  Today I went to the eye doctor and after some tests, dilating my eyes and an eye exam I ended up with a prescription for glasses.  Mo ... Read on »
Monday, January 2nd, 2012 by peytonsparents Posted in: Blog Posts in Children's Health A note from Mommy I have always been a voracious reader (when time permits) and when Travis bought me a Kindle I instantly fell in love with it.  I have read books I nev ... Read on »
Monday, October 31st, 2011 by peytonsparents Posted in: Blog Posts in Children's Health Dr Norlin called and my strep infection has returned which is the reason for my stinky trach.  So I am starting into another 10 days of an ... Read on »
Tuesday, October 25th, 2011 by peytonsparents Posted in: Blog Posts in Children's Health After two months in preschool the inevitable has happened - I got my first cold.  Although I went to school Tuesday, I was not feeling so hot.  Last week Mommy had made ... Read on »
Sunday, October 23rd, 2011 by peytonsparents Posted in: Blog Posts in Children's Health Jackson and I have memberships to the aquarium and despite going lots of times this year we never get tired of going back.  So we met up this morning a soon as it op ... Read on »