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Pernille U.

California
I am a 35 year old woman living in Florida. A few years ago I was diagnosed with Limb Girdle Muscular Dystrophy, a disabling neuro muscular disease, yeah, I am one of "Jerry's kids" or in this case adults. There are a lot of different kinds of muscular dystrophy with different symptoms... Full Bio
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Oh Winners, How I Pity Thee by Pernille U. Posted in: Blog Posts in General Medicine I have decided to branch out a little, and write a social commentary post today.  I have quite a few more pressing things to get done today, but there is a thought that ... Read on »
The Complexities of Time by Pernille U. Posted in: Blog Posts in General Medicine Every once in a while, when driving down the road I hear the following words on the radio: Eighty-Nine Cents in the ash tray Half empty bottle of Gatorade rolling in ... Read on »
Decisions by Pernille U. Posted in: Blog Posts in General Medicine Contact email keepinghopejourney@gmail.com Read on »
Abusing my privilege by Pernille U. Posted in: Blog Posts in General Medicine For the first time, I am going to use my blog to ask for something... I am going to participate in a NEDA (National Eating Disorders Association) walk in Tampa on February 1 ... Read on »
Cleaning off the Paint Brushes Enjoying the Process Part II by Pernille U. Posted in: Blog Posts in General Medicine Recently I wrote a blog about enjoying the process without expecting perfection.  See  Keeping Hope Journey: Enjoying the Process This post is somewhat of a continuati ... Read on »
The Myth of Altruism by Pernille U. Posted in: Blog Posts in General Medicine As you may have noticed in my recent blogs,  I am currently going through a "process" that is dominated by confusion, anger, self pity, self loathing, and hopelessness.  OK, ... Read on »
Enjoying the Process by Pernille U. Posted in: Blog Posts in General Medicine I am a good teacher, who cares? there are thousands of able bodied people out there that are exceptional teachers... I know how to knit, So what?  t ... Read on »
32 Candles by Pernille U. Posted in: Blog Posts in General Medicine Happy Birthday Jesper.  You would have been 32 today....I know you are in a better place, and that I should be celebrating your life, and not keep mourning your ... Read on »
Making Molehills Out Of Mountains With Strategically Placed Chairs by Pernille U. Posted in: Blog Posts in General Medicine I am an excellent listener, but…. I am absolutely horrible at trusting people, and following directions… There are times, where I dig myself into a deep black hole, an ... Read on »
Under Construction by Pernille U. Posted in: Blog Posts in General Medicine In the spirit of.... well, in the spirit... I have decided to make some changes to the layout of my blog.  I haven't done any remodeling since I started writing a long time ... Read on »
Objects in Mirror are Smaller Than They Appear by Pernille U. Posted in: Blog Posts in General Medicine I was reading a blog called ED-Bites. It is an amazing blog written by a beautiful person called Carrie, who is describing how she is recovering from Anorexia. What is ama ... Read on »
Anna and Carrie by Pernille U. Posted in: Blog Posts in General Medicine I miss writing.... Very few things have moved me in a way that has allowed me to write a blog post for a long time. It is not that I am lacking subjects to write about, b ... Read on »
Conceited? by Pernille U. Posted in: Blog Posts in General Medicine I have not watched as much of the Olympics as I usually do, I am not sure why, as still enjoy it.  Even though I have not watched as much as usual, certain things have not ... Read on »
Things to ponder.... by Pernille U. Posted in: Blog Posts in General Medicine I am finding myself in a pondering mood today, not that it is that unusual, I tend to think a lot about a lot of things. After writing my blog on inertia the other night I ... Read on »
Law of Inertia by Pernille U. Posted in: Blog Posts in General Medicine Newton's First Law States that: an object not subject to any net external force moves at a constant velocity. Thus an object will continue moving at its current velocity u ... Read on »
Remember Omaha by Pernille U. Posted in: Blog Posts in General Medicine "Right after that, I’m sitting there wondering what the hell am I gonna do; the sand dune is about three feet high, and I’m sitting against it. It gave you protection from s ... Read on »
Humble by Pernille U. Posted in: Blog Posts in General Medicine Merry Christmas, I think December was out to get me. Seriously, I swear yesterday was December 1st, and now it is Christmas Eve, well it actually turned into the 26th i ... Read on »
Purpose by Pernille U. Posted in: Blog Posts in General Medicine Recently I was approached by a friend of mine, who asked me if I would be willing to co write a book about healthcare and about how to deal with distracted doctors, emotiona ... Read on »
Cut off My Arm so You Can See Me by Pernille U. Posted in: Blog Posts in General Medicine Please check out my new project. I hate asking for money, but any small amount will be greatly appreciated. The book is very important to me, but even more to my friend. I ... Read on »
Labels, definitions, and who we are by Pernille U. Posted in: Blog Posts in General Medicine People-first language is a form of linguistic prescriptivism in English, aiming to avoid perceived and subconscious dehumanization when discussing people with disabilities, ... Read on »