Hannah is 9 years old and struggles with intractible epilepsy, hypertension, and alveolar hypoventilation syndrome. She has complex partial and tonic clonic seizures. We continue to work with genetics to see if she has an underlying syndrome. I started this blog to keep family and friends informed while started the journey of getting Hannah's seizure alert...
I have been suffering from constant migraines for four years. I tried everything under the sun until I was diagnosed with Hemicrania Continua. My body did not react well to the Indomethacin that took away the headaches, so I decided to have a Supra-Orbital Nerve Stimulator (very much like an Occipital Nerve Stimulator, but the wire is placed in a different area) implanted.
I am a mom and wife that deals with chronic nerve pain in my face. I just wrote a book about it called Don't waste your Pain. Over the last few years I have learned so much through my bout with pain. I realize this life is not about me but about glorifying God and loving others.
I was diagnoised with trigeminal neuralgia 12 years ago,I tried all the meds there were to no avail so i decided to have the MVD operation. The doctor cut and took out 60% of my nerve. The pain was worst than ever. I than had a nerve removed over my left eye and was pain free for 18 months and then the pain returned. After this I had the GAMMA KNIFE which did nothing. I am now in pain every day...
I am a Registered Nurse (full time) and a Certified Massage Therapist (in my free time). I work with Chronic Myofascial Pain, Fibromyalgia, Nerve Impingment, Frozen Shoulder, Sciatica ect.
My massage therapy is conducted in my home in a dedicated room.
I have had a constant headache now for over 2 years with migraines coming at least 4=5 times a week. Nothing seems to help. Mediation, stimuate implant, nerve block, even a special pillow. Nothing. I'm at my wits end. On Oct. 14th I'm scheduled for a 3rd surgery to remove the implant that has caused more harm then good. I just can't seem to catch a break. It has become very depressing.
I am om to 4 wonderful children. My oldest son Philip was born healthy or so we thought. At the young age of 6 weeks old he has his first brain operations, followed by his second one at 6 months old and suffered a stroke. He has now had over 18 brain operations, a stroke, over 23 orthopedic operations, pseudotumor, shunts, slit ventricle syndrome, syrinx, Central nerve disorder. I am just a...
i have had several back operations...all of them have failed.. i have had a spinal implant.. that diden't work.. im having severe low back and leg pain.i had my first operation and the doctor cut my nerve in my left leg... im on heave pain killers and all kinds of other drugs...they make me sick on my tummy...
