Mother to three children, with two of those children being twins. Twin B went undiagnosed in utero with a condition called Tracheoesophageal fistula (TEF). Repaired at birth and then released after twenty seven days of being in the Children's Hospital. Day twenty seven unfortunately he was rushed to emergency.
We rushed him back to Emergency at the hospital, after ten intubation attempts he...
My name is Lori and I reside in the Northeast. I was just diasgnosed with PKD September 8, 2009. I have to go to dialysis 3 times a week, and let's just say it's no fun! =( Although I do feel much better since being diasgnosed, I hate the diet restrictions, and they are constantly messing up my fistula in my arm, which in return is very painful for me. Hopefully by joining this site I could...
My name is Rayne Mazur. I have had Crohn's disease since adolescence. Along with the usual digestive problems, fistulas, skin rashes, aches and pains I have also experienced neurological damage, serious vitamin and iron deficiencies and have recently been diagnosed with a Hurthle cell mass on my Thyroid. Life with Crohn's disease can be difficult and frustrating. At times you...
