My real name is Jean, and I am a female, age 56. I live in northeast Ohio, and I am interested in art, writing, nature, animal rights and health care rights. Since 2001, I have been getting progressively disabed, with trouble walking, and muscle pain and stiffness, caused by exertion. My first symptom was severe pain and stiffness in my sacroiliac area, that spread up my spine...
Well, we are no celebrities, just a family going through life and it's ups and downs with a special needs child. Our son is diagnosed with Leigh's Disease, a terminal degenerative disorder which is categorized as a mitochondrial disorder... as it eats away at muscle tissue and brain matter. He also has severe epilepsy, developmental delays, cerebral palsy, reflux, lives on a ventiltor and trach...
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