NZ
I'm Susie, 23. I've been married 3 years to Matt, 25. We have Oceana who is 2 1/2 and Joshua who was born 7 Jan 2008. Joshua had an encephalocele - a neural tube defect - that has left a hole in his skull. His brain grew out through the back of the skull into a membrane-covered sack. We thought it was repairable by surgery after birth, but at 36 weeks we were informed that he'd die soon after...