I was DX with PBC , primary biliary cirrhosis in 2006 stage 2. fatigue is the first symtoms.chronic pain, back, feet, liver,shoulder blades. Fibromyalgia in liver and back.Panic disorder,don't sleep at night.Put on 55 lbs. I take 3 anitdepresants,do not work very well but it is what they give me 1mgx3 loraxapam .5mg loratab x4 10mg zolpidem bed time along with 15mg remeron .I take urso 500 for...
Hello I am a parent of a teenager with type 1 diabetes and compensated cirrhosis of the liver. My only objective here is to find usefull information to help my son grow up with the least complications possible. I have done tons of research on topics that we have crossed with his diagnosis. I just want to be sure that we do everything right to eliminate complications which might come from...
I'm a 60 year old mother & grandma that was really never sick until 2005, just 3 months after my best friend & husband passed away. He was ill for appx. 17 years. Skipping all the details & misdiagnosies, I was correctly diagnosed with non-alcoholic liver cirrhosis, post nacrotic. At present it's doing well and has been for some time. Since then I have had a...
Mom of 2 girls 16/24 Wife of 26 yrs G-Ma of 1 girl. As a BabyBoomer I have been HCV diagnosed since 2004 along w/alcoholism + (cirrhosis). Non-responsive to treatment 3 X. Turned in the towel on Western medicine. Taking another approach to health which is working great. I am here for support to anyone who needs an ear or a heart regarding this killer HCV.
I am 62 and was diagnosed with PSC (primary sclerosing cholangitis) and ulcerative colitis seven years ago, after several major cholangitis episodes. For several years I needed stent replacements in my main bile duct, because of biliary strictures, but this was resolved 1.5 years ago. I take UDCA (ursofalk) and mesalazine, as well as a large range of vitamins etc. After checking PSC on...
Father passed away with secondary liver cancer.
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Our daughter Gabriella was diagnosed in April with a severe and irrepairable case of Myocardial Bridging which is causing Secondary Restrictive Cardiomyopathy. September 25, just before being listed for her new heart, she suffered a left MCA stroke, imparing her right arm abilities and taking away her speech. She was put on the United Netwoek for Organ Sharing transplant listing on February 11,...
I have been running since I was in grade 4. I have run track and field, cross country, half marathons, trail races, 15-30km ultra marathons, triathlons, and now snow shoe running. I have my national level 2 coaching certification as group fitness certification. I currently coach at the post secondary level.
I train for running, triathlons, fitness, and other activities on a regular basis.
The...
I'm a 47 year old married father of 2 that was diagnosed in 1987 with Relapsing, remitting Multiple Sclerosis. I retired from the Sheriff's Department in 1996, and have been a stay at home dad since then. 3 years ago my diagnoses changed to secondary progressive. I have had more accumulation of disability in the last 3 years then I did in the first 19 combined. I blog about what's on my...
Latham Centers offers nationally known, innovative treatment for Prader-Willi Syndrome in a tranquil and beautiful setting on Cape Cod. Latham Centers is a 501(c)(3) non-profit organization. We are are approved, as a private needs school by The Massachusetts Department of Elementary & Secondary Education, and are accredited by The Department of Developmental Services, and the Department of...
