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Cindy

Titusville, Florida
I am a care free person and I enjoy life. My family is the most important to me. I have three son's from a previous marriage and my second marriage I have been married for twenty two years and have one son who twenty now. I was diagnosed back in 2005 with two disorders which changed my life and a lot of things that I used to do I can not do now like use to work in my yard, read and sew the...

thematrix777 Patient ExpertHealth Maven

North Las Vegas, Nevada
I am disabled with RSD (Reflex Sympathetic Dystrophy) for several years now. It is a relatively unknown neurological condition that effects my entire sympathetic nervous system.  It is chronic, progressive and incurable. In addition, I have neuropathy, several inoperable back issues and other health problems I deal with on a daily basis. Goals I am Working On:   Goal #1: I am...

Dr. Ahmad Javaid

bangalore, India
Dr.Ahmad Javaid. Physical therapy, certificate in spinal mobilizations and manipulation,certificate in ergonomics,Sweden RSI specialist,ergonomist,manual therapist, Myofascial specialist. Dr. Ahmad integrates various treatment methods for the effective management of various neuro-musculoskeletal discords. Dr. Ahmad is highly specialized in various advanced orthopedic...

Shona D.

California
I have Myotonic dystrophy and am currently trying to have a baby without passing on the genetic condition to my future baby.  I am using a technique called pre-implantation genetic diagnosis (PGD). I already have a baby who was conceived in this way. My father, grandfather and many others in my family also have Myotonic dystrophy, which is a kind of muscular dystrophy.  I am...

Lisa Harvey Vittek

Rocklin, California
My personal blog, http://www.cureforkayla.com, is dedicated to my daughter Kayla Vittek who was born with congenital myotonic dystrophy. Myotonic dystrophy, aka: myotonic muscular dystrophy, is the most common form of muscular dystrophy and affects 1:8000 people worldwide. It is a degenerative multisystemic disorder that affects most body systems including the heart, lungs, vision, smooth and...
Communities: Children's Health

Pernille U.

California
I am a 35 year old woman living in Florida. A few years ago I was diagnosed with Limb Girdle Muscular Dystrophy, a disabling neuro muscular disease, yeah, I am one of "Jerry's kids" or in this case adults. There are a lot of different kinds of muscular dystrophy with different symptoms and severety. The only thing they have in common is that no one know how they will progress, only...
Communities: General Medicine

justjay

Deer Park, Washington
I was born with Duchenne muscular dystrophy (DMD) and have a good outlook on life. I'm in a wheelchair and on a ventilator. My desire is to be an inspirational vehicle to others through my writing. God has been given me this talent and I hope to fulfill His plan. I wrote two Sci-Fi novels, one Christian novel and over 20+ poems.

Jeff .. Patient Expert

Berwick, Pennsylvania
I was diagnosed with Polycystic Kidney Disease in 1997, started dialysis in August 2007, and had a cadaveric kidney transplant May 3, 2008. I have also had gastric bypass surgery in 2002, and was diagnosed with Charcot Marie Tooth disease, a form of Muscular Dystrophy, as a child. I'm married, have a teen-aged son, and we have several dogs. I enjoy reading, anything with computers,...

4thefamily

United States

Molly Patient Expert

Portland, Oregon
In early 2005, I was 28 years old and just beginning to break into a career as an opera singer. I had received contracts for three main stage productions, a culmination of ten years of work toward my goal of making opera my life's work. I was at a turning point; these performances could make or break my budding career. One morning in March of that year, I woke, stood up, and passed out,...
Communities: General Medicine, Lupus