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loulou_787

Surrey, United Kingdom
I am a 28 year old who has recently received a lung transplant after an agonising wait.  I have pulmonary fibrosis and it is thought to have developed as a result of aggressive cancer treatment received for a childhood cancer called Wilms' tumour. Sadly, I had a number of post transplant complications but I am determined now to get my life back on track.  I am making slow...

lizzy1

salinas, California
 I'm 38 yrs old and a proud mother of three beautiful kids. I have been diagnosed with Pulmonary Fibrosis in July of 08 and Limited Scleroderma in November of 09.How am i dealing with it? Taking life as it is one day at a time...  I stay strong with a positive attitude. I'd really like to meet new people,especially if they can relate, as far as in my...

Diane D. Patient ExpertComplimentary & Alternative Medicine

Troutdale, Oregon
I am a wife of 32 years and a mother of 10! We have adopted 4 of our children. I'm heavily into researching alternative medicine and and natural remedies. My husband was diagnosed with StagelV cancer 3 years ago. After chemo and radiation didn't work, and the cancer traveled to his lungs, we started treating him naturally. He is happy and healthy today and we are looking at him definitely...

Spirited Lady Living Health MavenFacebook

Coeur d Alene, Idaho
I suffered from and eating disorder for many years. My intention now is to become an eating disorder recovery coach. Here is a short story of my journey. My ed started in about 4th or 5th grade after another one of our moves. I started spending all my allowance on candy and stashing it in my room. I also started playing sick from school so I could stay home and eat while everyone was gone....
Communities: Eating Disorders
Goals: Eat healthy

jamiebug

California
Hi, I am 30 and 2 years ago I was dying of Cystic Fibrosis. I cultured a resistant bacteria called Cepacia therefore I was not a candidate for transplantation at all transplant centers in America. . . but I found one 2000 miles away from my hometown in Idaho that was willing to evaluate my case.  I arrived in Pittsburgh December 3rd 2007. I was on 6 liters of oxygen and had only 11%...

ChristiMarie

Southlake, Texas
Well... I am 34 years old.  I was diagnosed with Cystic Fibrosis at 18 months old in Dallas, Texas by the best CF doctor Ever, Dr. Bob Kramer.  And now I am seen by the second best CF doctor ever, Dr. Randy Rosenblatt. :) I still have my native lungs and want to keep them as long as they will keep working for me.  Most of my friends have had transplants and I am so looking...

natalia

Toronto, Canada
The short version: I was born with Cystic Fibrosis, lived the life of a dreamer, only to find out as an adult that dreams do come true. This is my story of being a CF patient for 30 years, married to an amazing man, dealing with infertility, creating our little girl Scarlett through the help of a great friend and gestational surrogacy, and during all this, waiting for the gift of new lungs to...
Communities: Cystic Fibrosis

Phoeberosem

Portland, Oregon
I'm Phoebe. I was diagnosed with Cystic Fibrosis when I was 6 weeks old. i just made the decision to get a lung transplant, and now I'm working on that. :) I'm looking at throwing myself full force into the CF community through blogging. 
Communities: Cystic Fibrosis

Oli Lewington Patient Expert

California
A freelance writer and filmmaker, I started the SmileThroughIt blog to track my progress (good or bad) on the transplant list as I battled end-stage Cystic Fibrosis, the UK's most common life-threatening genetic disease. Luckily for me, I receive the Gift of Life - a life-saving double-lung transplant - in November 2007 and the blog now serves to track the immense changes in my life as I...
Communities: Cystic Fibrosis

Nathan F.

California
My name is Nathan and i'm battling with cystic fibrosis and awaiting a double lung transplant, I have a beautiful fiancee and two very spoilt dogs, i started my blog because of the extreme boredom from spending so much time in my second home 'hospital'.
Communities: Cystic Fibrosis