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Pulmonary Fibrosis Lung Transplant - People

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Surrey, United Kingdom
I am a 28 year old who has recently received a lung transplant after an agonising wait.  I have pulmonary fibrosis and it is thought to have developed as a result of aggressive cancer treatment received for a childhood cancer called Wilms' tumour. Sadly, I had a number of post transplant complications but I am determined now to get my life back on track.  I am making slow...

Oli Lewington Patient Expert

A freelance writer and filmmaker, I started the SmileThroughIt blog to track my progress (good or bad) on the transplant list as I battled end-stage Cystic Fibrosis, the UK's most common life-threatening genetic disease. Luckily for me, I receive the Gift of Life - a life-saving double-lung transplant - in November 2007 and the blog now serves to track the immense changes in my life as I...
Communities: Cystic Fibrosis


Nancy Matthews is 35 year old wife and mother with cystic fibrosis (CF) and diabetes. She has been waging a battle with CF, a terminal genetic disorder, for many years. In January of 2007, Nancyâ??s body entered the end stages of CF. On December 10, 2008 she received the miracle of a double lung transplant at the University of Pittsburgh Medical Center. Nancy holds a BA in Psychology and...
Communities: Cystic Fibrosis

Victoria Tremlett Patient Expert

Essex, United Kingdom
22 Year old Cystic Fibrosis sufferer waiting for a double lung transplant. A blog about the highs and lows of life on the transplant list.
Communities: Cystic Fibrosis

meggymegos Patient Expert

Lexington, North Carolina
My name is Meghann. I'm 28 years old and living with a lung disease called Bronchiectasis. I'm waiting for a double lung transplant. I'm listed at UNC Hospital's transplant center. I've been waiting a little over 9 months now. I have a wonderful family and friends that I love very much. I have a furry son named Neeko who is of Pomeranian descent. And, I love him to pieces! Disclaimer: I...

NiQi Tanja D. Facebook

Pretoria, South Africa
I am a 22, nearly 23 year old Cystic Fibrosis sufferer. And I am starting my journey towards a Bi-Lateral Lung transplant.    I used to be very active as a child, doing every sport under the sun.  Everything from swimming, to badminton and tennis, to netball , hockey and even cricket .   But now as I am older, and my disease has progressed, I am not as active. I am...
Communities: Cystic Fibrosis, Genetics


Portland, Oregon
I'm Phoebe. I was diagnosed with Cystic Fibrosis when I was 6 weeks old. i just made the decision to get a lung transplant, and now I'm working on that. :) I'm looking at throwing myself full force into the CF community through blogging. 
Communities: Cystic Fibrosis

Nathan F.

My name is Nathan and i'm battling with cystic fibrosis and awaiting a double lung transplant, I have a beautiful fiancee and two very spoilt dogs, i started my blog because of the extreme boredom from spending so much time in my second home 'hospital'.
Communities: Cystic Fibrosis

CysticGal Patient Expert

United States
This is my first time dedicating my writing to Cystic Fibrosis. I have written poems, plays and academic papers before, but I started to dry up as a writer. Once I realized that my focus on my health was taking me away from other writing projects, I realized, my health must become the focus of my writing projects! I am currently preparing for lung transplant surgery.
Communities: Cystic Fibrosis

Piper Beatty

New York, New York
I am a 27 year old CFer living it up and trying to stay healthy in New York City. I moved here in 2004 to go to law school after a lot of moving around (Colorado, Texas, Boston, Atlanta, and even a stint in England). After graduating from Columbia, I spent a couple of years working full time as a lawyer on Wall St before recently taking a temporary "retirement" to focus on my health...
Communities: Cystic Fibrosis