Well, we are no celebrities, just a family going through life and it's ups and downs with a special needs child. Our son is diagnosed with Leigh's Disease, a terminal degenerative disorder which is categorized as a mitochondrial disorder... as it eats away at muscle tissue and brain matter. He also has severe epilepsy, developmental delays, cerebral palsy, reflux, lives on a ventiltor and trach...
Dr. Reda Coston, CHS.,.CNC., MH., D.Sc.,N.D.
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Mom to a delightful special needs child who is living with Full Trisomy 13. Natalia is now 9 yrs old, born in 2000. http://livingwithtrisomy13.org/album14.htm
Be sure to visit SOFT USA for global Trisomy support http://www.trisomy.org
And also the Living with Trisomy 13 – Patau Syndrome website where you can view over 300 families who share this unique life journey with...
