Dell Rapids,
South Dakota
I am a mother of three; my oldest has Rett Syndrome, a severe progressive neurological disorder. Rett Syndrome is caused by a spontaneous mutation of the MecP2 gene and affects roughly 1:10,000 girls. We are learning so much about caring for a child with complex medical and educational needs, and caring for ourselves and our family at the same time. We could not do this as well without the...