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Hollymist

California
I have sarcoidosis which is an autoimmune disease which can effect any organ system in the body.  I was originally diagnosed in 1990 with a lung biopsy.  I started with neurosarcoidosis in 2000, and have been on disability since then. I have battled the disease with Prednisone on and off over the years, and am now on chronic chemotherapy meds for a chronic aseptic meningitis from...

jengw

California
I am training to be a certified health and wellness coach so that I can teach others how to live fully and happily. I am also in graduate school in Education.  I am even attempting to write three self help books in my free time.  I am a stay at home Mom to my teenage son. I am recovering from a benign brain tumor and meningitis that I had in 2001. I have brain damage...

Zipperhead .. Patient Expert

Tucson, Arizona
Peace officer's wife, mother of 2, middle school teacher on leave; Chiari Malformation, vascular & arthrochalasis Ehlers-Danlos, Syringobulbia, unsucessfully treated Tethered Cord. Primary damage due to EDS & 9 months of meningitis that has caused my brain to be taken over by progressive scarring; multiple grand mal seizures a day.

Heather M.

United States
Carter was born on March 27, 2009. We were surprised to learn that he had a cleft lip/palate and was missing his right outer ear. Our little guy was whisked away to the NICU with breathing difficulties. A few days later he was transferred to the children's hospital which is one hour away. He spent the next 10 weeks there. During that time he was diagnosed with a Chromosomal disorder which...

christhompson

Toronto, Canada
I'm a father of 2 beautiful girls, and I'm also the creator of Talking to Toddlers, an audio course for parents.  This course helps parents deal with toddler behavior, particularly resistance and defiance.  Useful for toddler ages up through childhood.

Toddler

United States

Lana B. Facebook

Ohio
When contemplating about writing an “about me” section that would talk about my diagnoses and the effect that they have had on my life. Every time I start to type, I am not sure what it is that I want to say. I just know that what I have to say has to have a profound effect on those reading the words and having all the same questions that I have had for some many years and even the...