I am a mother who was not warned by my doctors how to prevent the #1 viral cause of birth defects--congenital CMV (cytomegalovirus). My daughter Elizabeth was born disabled as a result and now my mission is to warn others how they can protect their unborn children--from CMV and from other viral and bacterial causes of birth defects. I am the author of a light-hearted memoir about my daughter...
I am a heart mommy to my first and only child, Chloe. She was born in Fall 2008 with rare congenital heart defect. I created my blog to raise awareness about America's #! Birth Defect!
I am a stage 4 Neuroblastoma survivor and a mother. My youngest daughter has many health problems, including Cerebral Palsy and multiple birth defects. Please join us as we navigate through this "special needs" journey.
Carter was born on March 27, 2009. We were surprised to learn that he had a cleft lip/palate and was missing his right outer ear. Our little guy was whisked away to the NICU with breathing difficulties. A few days later he was transferred to the children's hospital which is one hour away. He spent the next 10 weeks there. During that time he was diagnosed with a Chromosomal disorder which...
Mother of a 14 month old little girl with Dandy Walker Syndrome and other birth defects. I find hope in God's sovereignty over her life and know that she has been placed on this earth for a reason.
Having a child with special needs doesn't leave alot of *free time* but if I happen upon some, I love sewing and other crafts, jogging, cooking, and reading.
Ava~Hope for Congenital Diaphragmatic Hernia.
I am passionate about teaching parents how to advocate for their child's health. My third daughter Ava was born with Congenital Diaphragmatic Hernia. CDH is when (inside of the womb) the diaphragm does not form properly. The abdominal organs move up into the chest cavity, compromising the heart and lungs. Half of all babies born with this birth...
The mission of AAHD is to advance health promotion and wellness interventions for people with disabilities at the national, state and community level. We accomplish our mission through research, education, advocacy and public awareness. AAHD is governed by a national board of directors and is a 501 (c) (3). We host an active website at www.aahd.us and our website has a wealth of...
I'm Susie, 23. I've been married 3 years to Matt, 25. We have Oceana who is 2 1/2 and Joshua who was born 7 Jan 2008. Joshua had an encephalocele - a neural tube defect - that has left a hole in his skull. His brain grew out through the back of the skull into a membrane-covered sack. We thought it was repairable by surgery after birth, but at 36 weeks we were informed that he'd die soon after...
