I'm a 37 year old Mom to four boys and two girls. My youngest son was born with Down Syndrome and the many medical issues that come along with it. My lil man has congenital heart disease, lung disease, GI problems. He's survived heart failure, open heart surgery, a diaphragmatic hernia that collapsed his lungs, and he is currently battling failure to thrive brought on by the toll it's all taken...
My name is Rachael Wakefield. I'm 20yrs old from north west England. I suffer from a rare lung disease for which there is no cure. I host a couple of support websites to help support other patients and families affected by rare lung disease.
I am very lucky to be alive after a double-lung transplant in July 2006. I suffered the rarest lung disease called - Lymphangioleiomyomatosis (Lam). My illness never got me down..even though there were very hard times. I just kept fighting for my life n trying to breathe each time my lung collapsed (total 15 times). I used to be on 24 hr oxygen to help me breathe and also wheelchair bound. At...
My name is Meghann. I'm 28 years old and living with a lung disease called Bronchiectasis. I'm waiting for a double lung transplant. I'm listed at UNC Hospital's transplant center. I've been waiting a little over 9 months now.
I have a wonderful family and friends that I love very much. I have a furry son named Neeko who is of Pomeranian descent. And, I love him to pieces!
Disclaimer: I...
Researcher.
Mainly focused on the field of studying pathophysiology of cystic fibrosis (CF) lung disease.
Associated at CF research lab at psychology dept/Stanford as a basic science research associate.
Enjoy excercise: golfing, gym, hiking and so on.
Hi Im Jessica. My son was diagnosed with Bronchiectasis after failing 2 sweat tests and one genetic screening, all came back negative for CF. He has been fighting lung disease for all but 13 weeks of his 2 in a half years of life. I Blog, I am an avid blogger. I have been on this journey as a medical mom for quite some time and I want to help other parents learn how to be advocates...
The purpose of my blog is purely educational. My mother was not in good health for years - it all started when she was diagnosed with Interstitial Lung Disease (ILD) - cause unknown (or idiopathic - as the docs say). There were many occasions when I had to spend hours trying to get information on things the doctors assumed I knew about.
Sometimes it is good to do some research before a...
The Web site of The National Heart, Lung, and Blood Institute. (http://www.nhlbi.nih.gov)
The National Heart, Lung, and Blood Institute (NHLBI) provides global leadership for a research, training, and education program to promote the prevention and treatment of heart, lung, and blood diseases and enhance the health of all individuals so that they can live longer and more fulfilling...
I am a 27 year old CFer living it up and trying to stay healthy in New York City. I moved here in 2004 to go to law school after a lot of moving around (Colorado, Texas, Boston, Atlanta, and even a stint in England). After graduating from Columbia, I spent a couple of years working full time as a lawyer on Wall St before recently taking a temporary "retirement" to focus on my health...
I am 42 yrs old and I have full body RSD/ CRPS, Fibromyalgia and Osteo Arthritis. Chronic Pain is my first and middle name!
My husband has Sarcoidosis of the lungs. He is disabled by this disease.
