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Terri

Burlington, Iowa
Ava~Hope for Congenital Diaphragmatic Hernia. I am passionate about teaching parents how to advocate for their child's health. My third daughter Ava was born with Congenital Diaphragmatic Hernia. CDH is when (inside of the womb) the diaphragm does not form properly. The abdominal organs move up into the chest cavity, compromising the heart and lungs. Half of all babies born with this birth...

Cindi

Loveland, Colorado
Diagnosed with bladder cancer June 2006. Was supposed to be quick and easy TURBT. Had to redo 6 weeks later. Had blocked kidney from scar tissue. Took 2 attempts to put in a stent and then once that was removed another tumor found in my ovary. Result...total hysterectomy which led to a major DVT. Couldn't walk w/o crutches for 4 months but just as I was healing from that, I saw more blood in the...
Communities: Walk-a-thon, Biking, Running , ...

Neo-Conduit Patient Expert

California
Living with a chronic illness daily can be a challenge. In my case it is living with a Urinary Diversion, and Irritable Bowel. This journey in the last year has taken me down the road of multiple surgeries, surviving after living with a prolonged Bowel Obstruction, chronic ongoing infections and now a Bladder Stone. I wont lie this has been a hard road to walk yet I'm surviving through...

Stephanie

United States
I'm a 37 year old Mom to four boys and two girls. My youngest son was born with Down Syndrome and the many medical issues that come along with it. My lil man has congenital heart disease, lung disease, GI problems. He's survived heart failure, open heart surgery, a diaphragmatic hernia that collapsed his lungs, and he is currently battling failure to thrive brought on by the toll it's all taken...
Communities: Down Syndrome

TONI

crestview, Florida
   i live in the panhandle of florida. i have been on disablity for 18 years for cronic cervical neck pain after three surgeries. i have had a number of mini strokes and one large one with no noticable disablity. i have been dignosed with so many things it is hard to keep up. i am now waiting for a bladder cancer dignoses. i am scared to death! i would not no what to do if i did not...

Dawn W.

Wake Forest, North Carolina
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support   http://www.cdhsupport.org http://www.cdhresearch.org 

me4u2nvdale

California
I am 55 years of age. My husband recently passed away of massive heart failure on Feb 3rd. I have been sick for over a month with a cold/flu thing going around. I had been coughing to the point where it would hurt in the kidney area. I would lose bladder control. I think i may have a urinal track infection as well. I have lost my voice and my ears and throat are affected as well.

Tag

Norfolk, Virginia
I'm a retired Navy Weather Guesser who enjoys looking at clouds and sunsets. I had a radical cystectomy a year ago in September and chose to have a Neo bladder constructed .
Communities: Basketball, Golf, Volleyball , ...

Evie

California
 I am a 57 year very married mother of two adult children. My health issues are acid reflux with a large hiatal hernia  and some depression/anxiety. I was diagnosed  with Barrett's esphogus two years ago and currently take two - 20mg Aciphex once a day.When the RX isn't enough I take add extra stength Gaviscon and or OTC reflux medications. Even though I always wait to lay down...