I am a heart mommy to my first and only child, Chloe. She was born in Fall 2008 with rare congenital heart defect. I created my blog to raise awareness about America's #! Birth Defect!
I am the parent of a former micropreemie, who is also a surviving twin. After identical twin sister died at 27w4d, Daphne was delivered in critical condition and suffered kidney failure due to the blood loss in utero. She also had a congenital heart defect. She spent 5 months in the NICU and had open-heart surgery at 6 months. She continues to face feeding problems and some developmental...
I am a stay at home mom of two beautiful girls. I have a background as a Physical Therapist Assistant, but stopped working to stay at home with my girls after my youngest was born. Since then, I've been living in the world of congenital heart defects after my youngest daughter was diagnosed with Tetralogy of Fallot with Pulmonary Atresia, with several other complications. Its not been an easy...
I worked as a cardiovascular nurse specialist for more than 20 years. I have a passion to share how the choices we make each day determines what our tomorrows will become. Adopting a more healthy lifestyle can prevent so many cardiac problems.
I had open heart surgery as a child to correct a congenital heart defect. I also have a strong family history of coronary artery disease. So, I am...
Roger and Jesse Smith welcomed Lukas Scott into our lives in January of 2007. He came into this world with only one ventricle, but with incalculable lessons to teach those who love him.
Luke was born with a congenital heart defect, diagnosed at 20 weeks in utero with a missing right ventricle. We knew even before he was born that he would face three open-heart surgeries. As of August 2007,...
As a mother of two healthy, busy boys I was taken back when my third child was diagnosed with a soup of congenital heart defects (CHD) while still in utero. His conditions include: double inlet left ventricle (DILV), Transposition of the Great Arteries (TGA), a large ASD which has now been modified to create a single atrium, pulmonary atresia, and dextrocardia. He has already undergone two open...
I'm the father of Caden Gabriel Osborne (pictured). Caden born with 22q11.2 on 11/2/04 has endured numerous complications associated with a 22q11.2 chromosome deletion. His primary diagnosis is also called VCFS (Velo-Cardio-Facial Syndrome) or DiGeorge Syndrome. Caden's complications have included multiple heart defects, scoliosis, feeding difficulties, hypocalcemia, immune deficiencies, and...
Hi, I am Christine, a mother, a wife, a sister, an aunt, a godmother, and a friend. I have three wonderful boys. Andrew (14), Kenny (12) and Jonathon (2). Jonathon was our big surprise;after trying for 9 long years to have one more child, we just gave up in August 06 and Oct 06 I was extremely ill. To find out "SURPRISE" your pregnant. This is my story of...
