This blog is about a child that has Cerebral Palsy. This explains the therapy, the ups & downs, the day to day experiences that this child goes through. I (his mother) write these experiences in the hope it will help other moms/families in our same situation. I hope they can take comfort in the fact that they are not alone and hope they might find some helpful information that they may not...
Our third daughter was born at 27 weeks. By the grace of God she was able to be revived after her placenta suffered an abruption, her umbilical cord was knotted and she was born with a strep infection. After one week it was discovered she had grade 3 and 4 brain bleeds. A reservoir was placed to drain excess cerebral spinal fluid (CSF). At 35 weeks a shunt was put in. She is now home and life...
Well, we are no celebrities, just a family going through life and it's ups and downs with a special needs child. Our son is diagnosed with Leigh's Disease, a terminal degenerative disorder which is categorized as a mitochondrial disorder... as it eats away at muscle tissue and brain matter. He also has severe epilepsy, developmental delays, cerebral palsy, reflux, lives on a ventiltor and trach...
The Adapted Life is a blog is for parents of children with physical, cognitive and developmental disabilities who want to live a normal family life in a household likely filled with assistive technology (AT), paperwork and appointments. I am a parent of a teen with cerebral palsy who uses AT for communication, mobility and learning. I am also the founder of www.SayitwithSymbols.com, a web...
Seeking fellow lupus survivors from internet social networking communities. Its been over a decade since my initial diagnosis, so I consider myself a "lupus survivor" with valuable experience. I started a biographical collection of blogs, Ardent Cerebrations: Musings of a Lupus Survivor! at http://alupussurvivor.blogspot.com It defines this lupus survivor by her spirit, mind, body,...
