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hurst, Texas
I am the mother to 3 beautiful adopted children. 7,5, and 4. my 4 year old son has XXXY syndrome, Hyper IGE(aka Job-buckley or Job syndrome) A mild form of ectodermal dysplasia


Was wrongly DX'd with Stage 1 Grade 2-3 TCC with Carcinoma In Situ present by a local Uro by a sampling biopbsy. Never had blood or mirco blood. Negitive of Cytology. Cystoscopy revealed a non-specific inflamation under my right ureter. This doctor wanted to wait and see for six months. I said no because he mention biopsy which is synonymous in my mind for looking for cancer...Moved to a Major...


United States
I have a son with Septo Optic Dysplasia or de Morsier's Syndrome. Just doing my best to give him every opportunity in life and all the love he can stand. I also love helping others! If you have any questions about blindness or hormone issues or if you need resources please ask!
Communities: Children's Health