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Megan

United States
My name is Megan and I'm a Sixteen years old. In 2007 I was diagnosed with Cardiomyopathy. I am currently at Primary Childrens Medical Center waiting for a heart transplant. I will be here until I recieve my new heart!!! But know I just got my New HEART on September, 2 Tuesday 2008. And know I'am home and It's pretty hard liveing life after a Heart Transplant. If you would like to make a...

ERIN HAYES

United States
I'm a mother of two who recently lost our first child, Charlotte, to a rare chromosomal issue that resulted in various health issues and complications. She was 3 years and eight months old. With her we dealt with developmental issues as well as heart, lung, kidney, and feeding issues. She used oxygen and a feeding tube for most of her life. Ella, my second child, is not affected by this disease...

possibleologist

California
I have 2 sons, our second son is a child with special needs who was diagnosed with Cerebellar Hypoplasia, Microcephaly, Cerebral Palsy and Failure to Thrive.  He had a bard feeding tube put in at 15 months and later we switched it to a mickey. Our mission is to create a virtual village to raise our special needs children. We will discover, compile and share new possibilities that...

Adam Freeman

United States
My name is Adam Freeman and I am the proud father of Kayleigh Freeman who was born at 28 weeks, but was diagnosed early on with severe IUGR (Intrauterine Growth Restriction) and was delieverd via emergency c-section (due to preeclampsia) the size of a 22 week old little girl. She weighed an amazing 1 pound - 1 ounce and defied all the odds against her to survive through the pregnancy and after...
Communities: Pregnancy & Fertility

Lisa Harvey Vittek

Rocklin, California
My personal blog, http://www.cureforkayla.com, is dedicated to my daughter Kayla Vittek who was born with congenital myotonic dystrophy. Myotonic dystrophy, aka: myotonic muscular dystrophy, is the most common form of muscular dystrophy and affects 1:8000 people worldwide. It is a degenerative multisystemic disorder that affects most body systems including the heart, lungs, vision, smooth and...
Communities: Children's Health

SimonLevsMama

United States
Our son, Simon Lev , became suddenly ill when he was 4 months old and was diagnosed with Heart Failure due to a disease called Cardiomyopathy. We spent 4 months in the ICU with him and endured MANY ups and downs since that fateful day. Since August 1, 2008, we have faced a decision about a heart transplant, an ER visit for each of us, a gall bladder surgery, a forced quitting of a job and loads...
Communities: Children's Health

Hank Osborne

Goose Creek, South Carolina
I'm the father of Caden Gabriel Osborne (pictured). Caden born with 22q11.2 on 11/2/04 has endured numerous complications associated with a 22q11.2 chromosome deletion. His primary diagnosis is also called VCFS (Velo-Cardio-Facial Syndrome) or DiGeorge Syndrome. Caden's complications have included multiple heart defects, scoliosis, feeding difficulties, hypocalcemia, immune deficiencies, and...

michaelseres

California
I suffered with Crohns Disease for 30 years and after 20 ops I ended up with intestinal failure. I recently became the 11th person to have a small bowel transplant, at Churchill Hospital in Oxford. Post transplant I am learning to eat again and am on a feeding regime that goes via a tube directly in to my new bowel. I inject myself 6 times a day with anti sickness drugs. Having the...
Communities: Crohns & Colitis
Goals: Eat healthy

gehaag

East Rochester, New York
Hi, I was diagnosed with COPD/Asthma 6 years ago. I had smoked 2.5 packs per day for 30 years and quit 3 days prior to diagnosis.I was recently released from a week in the hospital with double pneumonia (my first exacerbation). I have been using Advair and Albuterol inhalers for a few years and thought that was as good as it was going to get, but struggled constantly to breathe and perform...
Communities: Asthma, COPD & Emphysema

Heather M.

United States
Carter was born on March 27, 2009. We were surprised to learn that he had a cleft lip/palate and was missing his right outer ear. Our little guy was whisked away to the NICU with breathing difficulties. A few days later he was transferred to the children's hospital which is one hour away. He spent the next 10 weeks there. During that time he was diagnosed with a Chromosomal disorder which...