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Megan

United States
My name is Megan and I'm a Sixteen years old. In 2007 I was diagnosed with Cardiomyopathy. I am currently at Primary Childrens Medical Center waiting for a heart transplant. I will be here until I recieve my new heart!!! But know I just got my New HEART on September, 2 Tuesday 2008. And know I'am home and It's pretty hard liveing life after a Heart Transplant. If you would like to make a...

ERIN HAYES

United States
I'm a mother of two who recently lost our first child, Charlotte, to a rare chromosomal issue that resulted in various health issues and complications. She was 3 years and eight months old. With her we dealt with developmental issues as well as heart, lung, kidney, and feeding issues. She used oxygen and a feeding tube for most of her life. Ella, my second child, is not affected by this disease...

possibleologist

California
I have 2 sons, our second son is a child with special needs who was diagnosed with Cerebellar Hypoplasia, Microcephaly, Cerebral Palsy and Failure to Thrive.  He had a bard feeding tube put in at 15 months and later we switched it to a mickey. Our mission is to create a virtual village to raise our special needs children. We will discover, compile and share new possibilities that...

Adam Freeman

United States
My name is Adam Freeman and I am the proud father of Kayleigh Freeman who was born at 28 weeks, but was diagnosed early on with severe IUGR (Intrauterine Growth Restriction) and was delieverd via emergency c-section (due to preeclampsia) the size of a 22 week old little girl. She weighed an amazing 1 pound - 1 ounce and defied all the odds against her to survive through the pregnancy and after...
Communities: Pregnancy & Fertility

Lisa Harvey Vittek

Rocklin, California
My personal blog, http://www.cureforkayla.com, is dedicated to my daughter Kayla Vittek who was born with congenital myotonic dystrophy. Myotonic dystrophy, aka: myotonic muscular dystrophy, is the most common form of muscular dystrophy and affects 1:8000 people worldwide. It is a degenerative multisystemic disorder that affects most body systems including the heart, lungs, vision, smooth and...
Communities: Children's Health

SimonLevsMama

United States
Our son, Simon Lev , became suddenly ill when he was 4 months old and was diagnosed with Heart Failure due to a disease called Cardiomyopathy. We spent 4 months in the ICU with him and endured MANY ups and downs since that fateful day. Since August 1, 2008, we have faced a decision about a heart transplant, an ER visit for each of us, a gall bladder surgery, a forced quitting of a job and loads...
Communities: Children's Health

Kathy A. Healthy Living ProfessionalHealth MavenFacebookComplimentary & Alternative Medicine

NW, Ohio
Kathy Atkinson is the owner of Creative Life Coaching, a personal growth and self development company offering products and services to support your quest for happiness and success in your personal and professional life. Since 2000, Kathy has been coaching clients in the US and abroad via the telephone. Kathy's life coaching web site - Eight Keys to Success offers a plan and a process for...

outofpocket Patient ExpertHealth Maven

Chicago, Illinois
I am founder of OutofPocket.com, a health care price transparency initiative to help consumers find the best value and make the most of their health care dollars. Over the past several years I have dedicated myself to researching and promoting price transparency initiatives. As a result of my research, I have become a health care maven in price transparency and I really enjoy sharing my...

Hank Osborne

Goose Creek, South Carolina
I'm the father of Caden Gabriel Osborne (pictured). Caden born with 22q11.2 on 11/2/04 has endured numerous complications associated with a 22q11.2 chromosome deletion. His primary diagnosis is also called VCFS (Velo-Cardio-Facial Syndrome) or DiGeorge Syndrome. Caden's complications have included multiple heart defects, scoliosis, feeding difficulties, hypocalcemia, immune deficiencies, and...

michaelseres

California
I suffered with Crohns Disease for 30 years and after 20 ops I ended up with intestinal failure. I recently became the 11th person to have a small bowel transplant, at Churchill Hospital in Oxford. Post transplant I am learning to eat again and am on a feeding regime that goes via a tube directly in to my new bowel. I inject myself 6 times a day with anti sickness drugs. Having the...
Communities: Crohns & Colitis
Goals: Eat healthy