The Brain Tumor Journal blog (braintumorjournal.blogspot.com) is my mother's story of her 30+ years of experiences associated with meningioma brain tumors . She wrote her story to help others that face the same challenges and disabilities that she faced. She wrote this journal over a period of years between about 1988-1995 before the advent of user friendly blogs. The original title was "I...
Boarding the Remission Train...where can I get an express ticket?
I married the love of my life Nick on 10.19.2008! We live in Louisville, KY. Shortly after being married we were faced with one of the hardest things imaginable, I was diagnosed with cancer. I was diagnosed with Oral cancer at age 23. I went through surgery to remove the tumor from my tongue in December 08 and had a...
My name is Kasie. It started when I was 12 years old and in 7th grade. I developed a large goiter on my lower neck. After many tests that came out suspisious I went in to surgery early morning of July 2005. It lasted 6 hours. I had my whole thyroid, 4 lymphoids, and 9 nodules removed all consisting of cancer cells and tumors. I?ll never forget that night when the nurse was wheeling me in to my...
Hi there - my name is Kristin Wall and I'm a survivor of Cushing's syndrome. I'm a 32 year old artistic geek and have a 6 year old son named Mason.
I developed Cushing's syndrome during my last trimester of pregnancy. Before getting pregnant, I was an active, healthy, fit person. I spent all lot of my free time outdoors with and I was addicted to endurance sports, like biking and...
I am a 39 years old Advanced Ovarian cancer survivor who is very happily married to my very best friend and soul mate where we live in San Jose, CA with our Blue Merle Sheltie "Blue Belle" and our Manx cat "Tonto".We have a pretty happy life together most of the time when I'm not fighting this cancer.
Most people would consider me to be a hard headed modern hippie; a...
I was recently diagnosed from MRI with what appeared to be a low grade astrocytoma brain tumor but when I had my craniotomy and it was sent to pathology, it was discovered it was a Ganglioglioma brain tumor. This is my story...
I am a contrarian, lawyer, problem child, Philly Eagles fan, amateur blogger, genius and Mama. I am a first-time parent, together with my beloved Husbatron, thrown into trial by fire learning to parent a child with a brain tumor in an inpatient hospital environment.
My goals are to further my own knowledge of brain tumors generally but specifically Atypical Teratoid Rhabdoid Tumors. When my...
My name is Kathy and I live in Virginia. I have an organization, Brown Bag For A Cure. We are committed to raising awareness and raising money for research into the cause and cure of pediatric brain tumors.
http://brownbagforacure.org
