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CysticFibrosisTeam ..

San Mateo, California
Communities: Cystic Fibrosis


United States
On April 30, 2008 our lives were changed forever! Our beautiful son Phoenix was born with Cystic Fibrosis! It's been a rollercoaster ride of ups and downs, but along the way we've learned about fighting for tomorrow! Phoenix may have Cystic fibrosis but Cystic Fibrosis will never have Phoenix!
Communities: Cystic Fibrosis

CysticGal Patient Expert

United States
This is my first time dedicating my writing to Cystic Fibrosis. I have written poems, plays and academic papers before, but I started to dry up as a writer. Once I realized that my focus on my health was taking me away from other writing projects, I realized, my health must become the focus of my writing projects! I am currently preparing for lung transplant surgery.
Communities: Cystic Fibrosis


New Jersey
Married my husband Jason, 7/7/2007.  Together we have two children.  Nathan was born August 2008, and was diagnosed with Cystic Fibrosis when he was one month old.  We knew there was a possibilty he would be born with Cystic Fibrosis because we found out we were both carriers of the CF gene during the pregnancy.  He was flagged for one of the mutations on the newborn...

Greg Katz Healthy Living ProfessionalHealth Maven

Parker, Colorado
Greg Katz is the founder of Surviving Strong and Surviving Strong TV.  Surviving Strong is an oasis for hope, perseverance, and devotion to your health and healing. As a psychotherapist and “Health Sherpa” I understand how chaotic life can be with a chronic or life-threatening illness. I know from personal and professional experience that physical, emotional and spiritual...

Aimee L.

San Clemente, California
My name is Aimee and I am 23 years old. I have been happily married to a US Marine for two and a half years. I have Cystic Fibrosis and excercise plays a huge role in staying healthy. I just need to keep motivated and stick to it!


Schifflange, Luxembourg
Hello I'm Yannick and 22 years old, I have Cystic Fibrosis and I need Oxygen between 2 years.
Communities: Cystic Fibrosis


Southlake, Texas
Well... I am 34 years old.  I was diagnosed with Cystic Fibrosis at 18 months old in Dallas, Texas by the best CF doctor Ever, Dr. Bob Kramer.  And now I am seen by the second best CF doctor ever, Dr. Randy Rosenblatt. :) I still have my native lungs and want to keep them as long as they will keep working for me.  Most of my friends have had transplants and I am so looking...

meggzzie Patient Expert

United States
This is my blog about my life with cystic fibrosis :)
Communities: Cystic Fibrosis