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Nancy Matthews is 35 year old wife and mother with cystic fibrosis (CF) and diabetes. She has been waging a battle with CF, a terminal genetic disorder, for many years. In January of 2007, Nancyâ??s body entered the end stages of CF. On December 10, 2008 she received the miracle of a double lung transplant at the University of Pittsburgh Medical Center. Nancy holds a BA in Psychology and...
Communities: Cystic Fibrosis


Everett, Washington
Hello there! I'm Jessi and I'm 28 years old. I have cystic fibrosis, CF related diabetes, and fibromyalgia. I live in the Seattle area and I love it here!! Currently I am doing ok with my health. The fibromyalgia gives me the most trouble on a day to day basis. In August of this year I was hospitalized for the first time for my CF because of pnuemonia which caused part of my lung to collapse....

NamSoo J.

Mt. View, California
Researcher. Mainly focused on the field of studying pathophysiology of cystic fibrosis (CF) lung disease. Associated at CF research lab at psychology dept/Stanford as a basic science research associate. Enjoy excercise: golfing, gym, hiking and so on.


New Jersey
Married my husband Jason, 7/7/2007.  Together we have two children.  Nathan was born August 2008, and was diagnosed with Cystic Fibrosis when he was one month old.  We knew there was a possibilty he would be born with Cystic Fibrosis because we found out we were both carriers of the CF gene during the pregnancy.  He was flagged for one of the mutations on the newborn...

Nathan L. Patient Expert

Nags Head, North Carolina
My name is Nathan. My wife, Tricia has Cystic Fibrosis (CF) and had been preparing for a double lung transplant until we discovered we were pregnant. Tricia is the most incredible person I've ever met. She keeps me humble and in love. Gwyneth is our beautiful, new, baby girl, born 15+ weeks early. Tricia is now breathing with the help of donated lungs, and Gwyneth is on her way out of the NICU...


Southlake, Texas
Well... I am 34 years old.  I was diagnosed with Cystic Fibrosis at 18 months old in Dallas, Texas by the best CF doctor Ever, Dr. Bob Kramer.  And now I am seen by the second best CF doctor ever, Dr. Randy Rosenblatt. :) I still have my native lungs and want to keep them as long as they will keep working for me.  Most of my friends have had transplants and I am so looking...

Jada ..

United States
Our blog will update on Cystic it affects our family personally. Sometimes it is honest to the point of harshness. We live with CF everyday. Our 5 year old daughter, Zoe, has CF. Thank you for reading.....
Communities: Cystic Fibrosis


Toronto, Canada
The short version: I was born with Cystic Fibrosis, lived the life of a dreamer, only to find out as an adult that dreams do come true. This is my story of being a CF patient for 30 years, married to an amazing man, dealing with infertility, creating our little girl Scarlett through the help of a great friend and gestational surrogacy, and during all this, waiting for the gift of new lungs to...
Communities: Cystic Fibrosis


Portland, Oregon
I'm Phoebe. I was diagnosed with Cystic Fibrosis when I was 6 weeks old. i just made the decision to get a lung transplant, and now I'm working on that. :) I'm looking at throwing myself full force into the CF community through blogging. 
Communities: Cystic Fibrosis

Margaux H.

United States
Hello! I am so excited to be a part of Healthblogger. My son, Benjamin, was born with Cystic Fibrosis, March 11, 2009. My husband and I had no idea we were carriers until my initial blood work through my OB, revealed I was one. We had my husband tested, then decided on an amnio at 15 weeks gestation. A week and a half later we received the news that our son would be affected with CF. It's been a...
Communities: Cystic Fibrosis