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Bicuspid

United States

Amy Schroeder

United States
My blog is the true story of what living with a congenital heart defect is like - and how a mother navigates this illness.
Communities: Children's Health

Round Peg Patient Expert

Emeryville, California
Hi, I'm Round Peg. I'm a wife, to a wonderful, caring and giving man.  I'm a mother to two wonderful children; a 3.5 year old PTSD sufferer with a minor heart murmur and a 1.5 year old son who has craniosynostosis and a bicuspid aortal valve.  I'm also sister and caregiver to my 23 year old paraplegic brother, who lives with me for the time being.  On top of all that fun, I'm a...

Stephanie

United States
I'm a 37 year old Mom to four boys and two girls. My youngest son was born with Down Syndrome and the many medical issues that come along with it. My lil man has congenital heart disease, lung disease, GI problems. He's survived heart failure, open heart surgery, a diaphragmatic hernia that collapsed his lungs, and he is currently battling failure to thrive brought on by the toll it's all taken...
Communities: Down Syndrome

Terri

Burlington, Iowa
Ava~Hope for Congenital Diaphragmatic Hernia. I am passionate about teaching parents how to advocate for their child's health. My third daughter Ava was born with Congenital Diaphragmatic Hernia. CDH is when (inside of the womb) the diaphragm does not form properly. The abdominal organs move up into the chest cavity, compromising the heart and lungs. Half of all babies born with this birth...

Lisa

Suffern, New York
I am a mother who was not warned by my doctors how to prevent the #1 viral cause of birth defects--congenital CMV (cytomegalovirus). My daughter Elizabeth was born disabled as a result and now my mission is to warn others how they can protect their unborn children--from CMV and from other viral and bacterial causes of birth defects. I am the author of a light-hearted memoir about my daughter...
Communities: Pregnancy & Fertility

Vieiragirl

Boston, Massachusetts
I thought I would start a blog of adults with Congenital Heart Disease. Instead of talking about their disease, talk more about the stories, and how they see life. I want to ask a series of questions and see what answers I get. Also I want to be able to let some of the first generation of survivors tell their stories. Together I hope to give hope to future generation of survivors, but also...
Communities: Heart Health

Tina

United States
I am a stay at home mom of two beautiful girls. I have a background as a Physical Therapist Assistant, but stopped working to stay at home with my girls after my youngest was born. Since then, I've been living in the world of congenital heart defects after my youngest daughter was diagnosed with Tetralogy of Fallot with Pulmonary Atresia, with several other complications. Its not been an easy...
Communities: Children's Health

chdbabies

kansas city, Missouri
I am a heart mommy to my first and only child, Chloe. She was born in Fall 2008 with rare congenital heart defect. I created my blog to raise awareness about America's #! Birth Defect!

Bhem..Mother of TONET WITH pda

California
i am 28 years old..a mother of a baby with congenital heart defect(PDA)..If you have question regarding my baby's case, i am willing to share....