Congenitally Bicuspid - People

Hi, I'm Round Peg. I'm a wife, to a wonderful, caring and giving man. I'm a mother to two wonderful children; a 3.5 year old PTSD sufferer with a minor heart murmur and a 1.5 year old son who has craniosynostosis and a bicuspid aortal valve. I'm also sister and caregiver to my 23 year old paraplegic brother, who lives with me for the time being. On top of all that fun, I'm a full-time...

Ava~Hope for Congenital Diaphragmatic Hernia. I am passionate about teaching parents how to advocate for their child's health. My third daughter Ava was born with Congenital Diaphragmatic Hernia. CDH is when (inside of the womb) the diaphragm does not form properly. The abdominal organs move up into the chest cavity, compromising the heart and lungs. Half of all babies born with this birth...

As a mother of two healthy, busy boys I was taken back when my third child was diagnosed with a soup of congenital heart defects (CHD) while still in utero. His conditions include: double inlet left ventricle (DILV), Transposition of the Great Arteries (TGA), a large ASD which has now been modified to create a single atrium, pulmonary atresia, and dextrocardia. He has already undergone two open...

I am a stay at home mom of two beautiful girls. I have a background as a Physical Therapist Assistant, but stopped working to stay at home with my girls after my youngest was born. Since then, I've been living in the world of congenital heart defects after my youngest daughter was diagnosed with Tetralogy of Fallot with Pulmonary Atresia, with several other complications. Its not been an easy...

I'm a 37 year old Mom to four boys and two girls. My youngest son was born with Down Syndrome and the many medical issues that come along with it. My lil man has congenital heart disease, lung disease, GI problems. He's survived heart failure, open heart surgery, a diaphragmatic hernia that collapsed his lungs, and he is currently battling failure to thrive brought on by the toll it's all taken...

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support http://www.cdhsupport.orghttp://www.cdhresearch.org

My personal blog, http://www.cureforkayla.com, is dedicated to my daughter Kayla Vittek who was born with congenital myotonic dystrophy. Myotonic dystrophy, aka: myotonic muscular dystrophy, is the most common form of muscular dystrophy and affects 1:8000 people worldwide. It is a degenerative multisystemic disorder that affects most body systems including the heart, lungs, vision, smooth and...

I worked as a cardiovascular nurse specialist for more than 20 years. I have a passion to share how the choices we make each day determines what our tomorrows will become. Adopting a more healthy lifestyle can prevent so many cardiac problems. I had open heart surgery as a child to correct a congenital heart defect. I also have a strong family history of coronary artery disease. So, I...

I am mom to three kids: an 8 year old daughter with a severe bilateral congenital hearing loss and 2 1/2 year old twin sons. Our daughter learned to listen and talk using the principles of auditory-verbal therapy (AVT). Talking 24/7 chronicles her journey.

A dual citizen of the US and Canada, I moved here to the US in 2003 to be with my husband, John. Together, we have two boys, Eric (born in 2006) and Danny (born in 2008). Danny was a month early and was diagnosed shortly after birth with congenital CMV. After spending 2 months in the hospital receiving anti-viral treatment, he came home and we began our life as a family with a special needs...