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Congenital Defects - People

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Lisa

Suffern, New York
I am a mother who was not warned by my doctors how to prevent the #1 viral cause of birth defects--congenital CMV (cytomegalovirus). My daughter Elizabeth was born disabled as a result and now my mission is to warn others how they can protect their unborn children--from CMV and from other viral and bacterial causes of birth defects. I am the author of a light-hearted memoir about my daughter...
Communities: Pregnancy & Fertility

chdbabies

kansas city, Missouri
I am a heart mommy to my first and only child, Chloe. She was born in Fall 2008 with rare congenital heart defect. I created my blog to raise awareness about America's #! Birth Defect!

Terri

Burlington, Iowa
Ava~Hope for Congenital Diaphragmatic Hernia. I am passionate about teaching parents how to advocate for their child's health. My third daughter Ava was born with Congenital Diaphragmatic Hernia. CDH is when (inside of the womb) the diaphragm does not form properly. The abdominal organs move up into the chest cavity, compromising the heart and lungs. Half of all babies born with this birth...

Tina

United States
I am a stay at home mom of two beautiful girls. I have a background as a Physical Therapist Assistant, but stopped working to stay at home with my girls after my youngest was born. Since then, I've been living in the world of congenital heart defects after my youngest daughter was diagnosed with Tetralogy of Fallot with Pulmonary Atresia, with several other complications. Its not been an easy...
Communities: Children's Health

Mindi

United States
As a mother of two healthy, busy boys I was taken back when my third child was diagnosed with a soup of congenital heart defects (CHD) while still in utero. His conditions include: double inlet left ventricle (DILV), Transposition of the Great Arteries (TGA), a large ASD which has now been modified to create a single atrium, pulmonary atresia, and dextrocardia. He has already undergone two open...
Communities: Children's Health

Debbie Registered Nurse

Phoenix, Arizona
I worked as a cardiovascular nurse specialist for more than 20 years. I have a passion to share how the choices we make each day determines what our tomorrows will become. Adopting a more healthy lifestyle can prevent so many cardiac problems. I had open heart surgery as a child to correct a congenital heart defect. I also have a strong family history of coronary artery disease. So, I am...

Bhem..Mother of TONET WITH pda

California
i am 28 years old..a mother of a baby with congenital heart defect(PDA)..If you have question regarding my baby's case, i am willing to share....

jessmith

Puyallup, Washington
Roger and Jesse Smith welcomed Lukas Scott into our lives in January of 2007. He came into this world with only one ventricle, but with incalculable lessons to teach those who love him. Luke was born with a congenital heart defect, diagnosed at 20 weeks in utero with a missing right ventricle. We knew even before he was born that he would face three open-heart surgeries. As of August 2007,...
Communities: Running, Children's Health

Amy Schroeder

United States
My blog is the true story of what living with a congenital heart defect is like - and how a mother navigates this illness.
Communities: Children's Health

Melissa H.

California
I am the parent of a former micropreemie, who is also a surviving twin. After identical twin sister died at 27w4d, Daphne was delivered in critical condition and suffered kidney failure due to the blood loss in utero. She also had a congenital heart defect. She spent 5 months in the NICU and had open-heart surgery at 6 months. She continues to face feeding problems and some developmental...
Communities: Children's Health