This blog is for anyone who has to undergo a stem cell transplant, is fighting Hodgkins Lymphoma or being offered a clinical trial. I try to offer my perspective on the disease and how to deal with it while sharing aspects of my life that I try to keep as normal as possible.
CEO for Natural Health International a global company that designs and manufactures USDA organic, clinically proven natural products. Our focus is on education, premium quality products and creating optimal foundation health with 5 years of clinical trials on Femmenessence and natural alternative to HRT for menopausal women
I was born in Fargo, North Dakota and have lived in Denver, Colorado since 1997.
I originally tried to get into the Tovaxin clinical trial in August of 2007 with no luck. Since then my disease has progressed rapidly to the point I am on full-time disability.
FULL TIME DISABILITY AT THE AGE OF 32!
I am now trying as last resort, high dose Cytoxan (also known as HiCy, Revimmune or...
In April 2008 I had the first inkling something was wrong when I temporarily lost all feeling below the waist. In september 2008 I was finally diagnosed with relapsing-remitting Multiple Sclerosis. In November I was offered the chance to be a part of a clinical trial comparing a new drug called alemtuzamab with exisiting drug - rebif interferon beta 1a. I was randomized to Rebif but will be...
Ellen DiNucci, M.A., is a trainer and coach in Power Break(SM) Meditation Skills for Productivity, Innovation and Wellness. She consults with organizations and individuals offering workshops, talks and private sessions. Ellen is also a curriculum developer and instructor at Stanford Hospital, Stanford University and Alta Bates Summit Medical Center.
Ellen has served as a project and research...
The Web site of The National Institute of Diabetes and Digestive and Kidney Diseases. (http://www2.niddk.nih.gov)
The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) conducts and supports research on many of the most serious diseases affecting public health. The Institute supports much of the clinical research on the diseases of internal medicine and...
The purpose of my blog is purely educational. My mother was not in good health for years - it all started when she was diagnosed with Interstitial Lung Disease (ILD) - cause unknown (or idiopathic - as the docs say). There were many occasions when I had to spend hours trying to get information on things the doctors assumed I knew about.
Sometimes it is good to do some research before a...
Nearly 18 years ago, I did not understand what sounds meant to me. Every morning for the first few weeks, when I was a rough little three-year old child, my mother had to sit on me in order to get the magnet on my head. I know that sounds cruel of my mother, but I am grateful to her for doing this because she has taught me that it is unimaginable to live in a silent world. Today, I understand...
A World Without Multiple Sclerosis
The Myelin Repair Foundation (MRF) is the world’s largest research organization exclusively focused on developing the next generation of treatments for multiple sclerosis — myelin repair. Myelin repair is the only current research approach that has the potential to actually repair nerve damage and halt the progress of multiple...
I am a citizen journalist, writer, investor and caregiver.
I am the sole caregiver for my mother; she suffers from Alzheimer's disease.
Prior to moving to Delray Beach, Florida to take care of my mother I was CEO of a software development and marketing company based in Reston, Va.
I worked in several Wall Street firms, venture capital and as a private investor. The...
