I'm a 37 year old Mom to four boys and two girls. My youngest son was born with Down Syndrome and the many medical issues that come along with it. My lil man has congenital heart disease, lung disease, GI problems. He's survived heart failure, open heart surgery, a diaphragmatic hernia that collapsed his lungs, and he is currently battling failure to thrive brought on by the toll it's all taken...
Jane M. Martin is a respiratory therapist, author and teacher with over twenty-five years of experience in all aspects of respiratory care. She is the founder and director of Breathing Better Living Well.com, a website providing information and support for people and families with pulmonary disease.
She is the author of Breathe Better, Live in Wellness: Winning Your Battle Over...
My name is Rachael Wakefield. I'm 20yrs old from north west England. I suffer from a rare lung disease for which there is no cure. I host a couple of support websites to help support other patients and families affected by rare lung disease.
I am very lucky to be alive after a double-lung transplant in July 2006. I suffered the rarest lung disease called - Lymphangioleiomyomatosis (Lam). My illness never got me down..even though there were very hard times. I just kept fighting for my life n trying to breathe each time my lung collapsed (total 15 times). I used to be on 24 hr oxygen to help me breathe and also wheelchair bound. At...
I am a 28 year old who has recently received a lung transplant after an agonising wait. I have pulmonary fibrosis and it is thought to have developed as a result of aggressive cancer treatment received for a childhood cancer called Wilms' tumour. Sadly, I had a number of post transplant complications but I am determined now to get my life back on track. I am making slow...
I am a young woman living with pulmonary hypertension and Eisenmenger's disease. I was diagnosed with both at the ripe old age of 9 months old, and I'm currently 36. I am pretty sure the doctors back then would never imagine I'd have made it this far, but I'm still kicking! I started my blog years ago to write just about anything, since I was tired of writing in journals. Typing is a lot faster!...
29 year old mom and wife who have been diagnosed with lupus since 2002.
at the course of having lupus, i got operated in the lungs due to pleurisy, suffered pulmonary embolism and cyst in the ovary.
but now i am in remission.
Researcher.
Mainly focused on the field of studying pathophysiology of cystic fibrosis (CF) lung disease.
Associated at CF research lab at psychology dept/Stanford as a basic science research associate.
Enjoy excercise: golfing, gym, hiking and so on.
Hi Im Jessica. My son was diagnosed with Bronchiectasis after failing 2 sweat tests and one genetic screening, all came back negative for CF. He has been fighting lung disease for all but 13 weeks of his 2 in a half years of life. I Blog, I am an avid blogger. I have been on this journey as a medical mom for quite some time and I want to help other parents learn how to be advocates...
Physician specialist in Clinical Pulmonology. Fellow Member of the American College of Chest Physicians. Member of the American Thoracic Society. Trained in Caracas, Venezuela at the Pulmonary Division of the University Hospital of Caracas. Taught there Pulmonary Medicine. Supporting the Pharmaceutical Industry in New York, New York - Current Residence: Manhattan. Interested in the patient...
