Carter was born on March 27, 2009. We were surprised to learn that he had a cleft lip/palate and was missing his right outer ear. Our little guy was whisked away to the NICU with breathing difficulties. A few days later he was transferred to the children's hospital which is one hour away. He spent the next 10 weeks there. During that time he was diagnosed with a Chromosomal disorder which...
My name is Dawn and I am the mother of a 20 year old daughter with a rare chromosome abnormality called Trisomy 9p. She was diagnosed with Lennox-Gastaut syndrome, a seizure disorder.
She is considered medically fragile, but she is a fighter. She was not expected to reach her 2nd birthday and here she is, 18 years later, still smiling through it all.
I think that we parents of special needs...
The bipolar disorder diagnosis at the age of 23 was a relief to know I was not simply a bad person and there was a reason for the way I have felt. Yet I have been struggling to cope and understand this disorder... what does it mean? How do the brain imbalances affect my behavior and moods? Why do I rapid cycle? Why do I get obsessive thoughts? Is there a link between mania and memory? Is there...
Biography I am Dr. Hal Sommerschield. I have my Ph.D. degree in Clinical Psychology from Michigan State University. I also have a BA degree from the University of Michigan, a B.D. degree from Northern Baptist Theological Seminary and a M.A. degree from Michigan State University. I decided to become a psychologist after taking a high school class, which introduced me to Sigmund Freud's theories....
I am disabled with RSD (Reflex Sympathetic Dystrophy) for several years now. It is a relatively unknown neurological condition that effects my entire sympathetic nervous system. It is chronic, progressive and incurable. In addition, I have neuropathy, several inoperable back issues and other health problems I deal with on a daily basis.
Goals I am Working On: Goal #1: I am...
I have been suffering with Migraine disease since I was 13 years old. I went undiagnosed until I was about 24, when my Migraines got out of control.
I found a wonderful site and forum, My Migraine Connection, where I met with one of the top patient advocates in the country, Miss Teri Robert. I read her book, Living Well with Migraine Disease and Headaches and it changed my life. I now have the...
I'm a mother of two who recently lost our first child, Charlotte, to a rare chromosomal issue that resulted in various health issues and complications. She was 3 years and eight months old. With her we dealt with developmental issues as well as heart, lung, kidney, and feeding issues. She used oxygen and a feeding tube for most of her life.
Ella, my second child, is not affected by this disease...
My real name is Jean, and I am a female, age 56. I live in northeast Ohio, and I am interested in art, writing, nature, animal rights and health care rights. Since 2001, I have been getting progressively disabed, with trouble walking, and muscle pain and stiffness, caused by exertion. My first symptom was severe pain and stiffness in my sacroiliac area, that spread up my spine...
I am a mother who was not warned by my doctors how to prevent the #1 viral cause of birth defects--congenital CMV (cytomegalovirus). My daughter Elizabeth was born disabled as a result and now my mission is to warn others how they can protect their unborn children--from CMV and from other viral and bacterial causes of birth defects. I am the author of a light-hearted memoir about my daughter...
