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Christine S.

Las Vegas, Nevada
I had surgery for Chiari 1 malformation 4-12-07. Still dealing with the pains, never went away. Just trying to get advice on what to do and get in touch with other people who have had the surgery and know what I am going through. It's hard for people to understand what I am dealing with.
Communities: Chiari Malformation

Wend B

Chaska, Minnesota
I have 4 kids, I am currently working on Social Security Disabilty (finally at the court hearing level). I have been married for 14 1/2 years. My family has a plethora of genetic disorders. I have Arnold Chiari Malformation type I, Ehlers-Danlos Syndrome, Tethered Cord Syndrome, in 2001 I had a small stroke that I have fully recovered from, and now have a 1.8cm aneurysm on my right kidney....

Christine from WI Patient Expert

Green Bay, Wisconsin
About 5 years ago I started having headaches when I would lie down that mysteriously dissapeared when I sat up. An MRI determined I had a neurological disorder called a Chiari Malformation. I tried many different prescription medications that did nothing for my pain before I was referred to a neurosurgeon. Two surgeries later I ended up experiencing the worst pain imaginable, wondering if I...
Communities: Chiari Malformation

Dr. John D. Medical DoctorHealth Maven

Specialty: Plastic Surgery
Orange County, California
Dr John Di Saia is a "real" plastic surgeon not one of the many online "dime story phonies." He completed Medical school at UC Irvine in 1990 and started a General Surgery residency that year at UC Irvine. He completed General and Plastic Surgery Residencies at UC Irvine in 1995 and 1997 respectively. Dr Di Saia became board certified in by the American Board of Surgery in...

Taffy

Weatherford, Oklahoma
I am a 38 year old accountant, on leave, mother of 4 and wife of too many years to count. I have 2 beautiful grandchildren, yeah I got an early start, married @ 16. I was diagnoised with Chiari Malformation in 1999 and Ehlers-Danlos Syndrome in 2005. I have been off work since late September 09 as my symptoms have forced my body to listen. I have always been one to fight through the pain and...
Communities: Massage/Spa, Meditation, Yoga , ...

Shalunya

olympia, Washington
Diagnosed with Chiari in Aug '05 when my hubby was stationed overseas in Korea.  6 days after his return from Korea I had my decompression surgery.  Five years later, I am still suffering from nerve damage, dysequilibrium, migraines, central sleep apnea in addiition to Diastolic Dysfunction and DDD.  My hubby is back in Korea, my son is going to college in Oklahoma and I am...
Communities: Walking, Meditation, Yoga , ...

sugipar2006 Facebook

cleveland, Tennessee
I was diagnosed with Chiari when I was 13. Mine is 10 mm. My first symptoms was pain in my neck. It just got worse and worse, where I was vomiting and shaking every day because I was in pain. I had my decompression surgery Sept 4, 2008. The first 3 months after I felt good. After that the pain came back but nowhere like it was before.  I get pain at my neck and head. I feel lots of...

Michael A. Zadeh Medical DoctorHealth MavenFacebook

Encino, California
Michael A. Zadeh, M.D. is a Board Certified General Surgeon practicing in the San Fernando Valley area. Dr. Zadeh’s passion for surgery is reflected in the wide variety of procedures he performs, including a special interest in laparoscopic surgery which was a large part of his surgical training. His expertise in minimally invasive techniques, along with the application of...

jamien28

Texas
Hi, my name is jamie i find out i have chiari malformation and i am going to have surgery next month but i am really scared. I have 2 kids and a husband to take care of and i am scared i will not take care of them..