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Cerebellar Ataxia - People

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Kyle Bryant

California
My goal is to push my limits (physical, emotional, mental) and encourage others to do the same.  At age 17 I was devastated with the diagnosis of a rare disease called Friedreich's ataxia (FA).  What the heck is Friedreich's ataxia and what would it mean to me for the rest of my life?  Over the next couple years my family and I found out that FA is a progressive...
Communities: Brain Health

COCKTAILDIZEAZ

Live Oak, Texas
Hi, my name is Erica and I live in San Antonio, TX. This blog is a mixture of personal experience and advice/guidance on what I've learned through reading, doctors, forums, etc. Hope you enjoy yourself and stay well! I feel as if I am a cocktail of pain, never know which body part is going to hurt at any given time. Possible Disorders: Fibromyalgia, Reynaud's Syndrome, Chiari Malformation....

iceteezz

Clinton Township, Michigan
hello I live in Michigan,like walks,have 4 children and 5 grandchildren   I am looking into more information about ataxia

Chris H.

United States
My name is Chris Hempel. In October 2007, my husband and I received life-threatening news about our cholesterol - but our lives weren't in danger. We learned that we were born with a defect in a critical cholesterol gene and that our precious six-year-old identical twin daughters, Addi and Cassi, inherited a double mutation - both genetic cholesterol defects. For many months, I'd known...

possibleologist

California
I have 2 sons, our second son is a child with special needs who was diagnosed with Cerebellar Hypoplasia, Microcephaly, Cerebral Palsy and Failure to Thrive.  He had a bard feeding tube put in at 15 months and later we switched it to a mickey. Our mission is to create a virtual village to raise our special needs children. We will discover, compile and share new possibilities that...

jmead1970

United States
I pastor New Covenant Church in Knoxville, Iowa. I am 39 years old; my wife and I have been married for nearly 19 years. My oldest son, Brendan, will be 18 in June. My oldest daughter, Shaylee, is 12 and my youngest daughter, Madelyn, is 9. I had a stroke in December, 2008. I had to have surgery to remove 75-90% of my cerebellum and 3 strokes in my brain stem. The Doctors told my family to...
Communities: General Medicine