Peace officer's wife, mother of 2, middle school teacher on leave; Chiari Malformation, vascular & arthrochalasis Ehlers-Danlos, Syringobulbia, unsucessfully treated Tethered Cord. Primary damage due to EDS & 9 months of meningitis that has caused my brain to be taken over by progressive scarring; multiple grand mal seizures a day.
When I found out that my heart was failing in October 2007, I found myself with a large list of phone calls to make and return, and continue to do so with each new piece of information.
enter: this blog. come here for the latest.
About me: I am 27, I live in NYC, and I am on a non-stop quest for healing. I have a chronic illness called Scleroderma / Mixed Connective Tissue Disease (mouthful, i...
Avid runner since 1979 logging 10 to 20 miles a week at 6 to 7 mph and fun running in many 6.2K events. In 2009 had a detached retina which required 3 surgeries to reattach but ultimately lost the vision in my right eye. AFter each of the 1st two surgeries upon release for activity by the doctor I resumed my running without incident. After the 3rd surgery that last 7 hrs under...
