Got Down Syndrome is a blog of a girl who has a brother with Down syndrome. She shares her findings, research about Down syndrome and life with someone who has Down syndrome. There is so much potential for individuals with Down syndrome and any research or great resources are posted on here. Everything from nutritional intervention, food allergies, speech therapy and everything else in between...
I'm a recreational athlete living in the Lower Hudson Valley of NY exploring my passion for endurance sports and the outdoors. I've run 13 marathons and love getting out for a run or a bike ride. I've just completed my first 50k Ultra this Spring. I'm relatively new to trail running, yet I've gained quite a bit of experience in a fairly short amount of time. I also enjoy kayaking when it's warm...
I am a mother of three; my oldest has Rett Syndrome, a severe progressive neurological disorder. Rett Syndrome is caused by a spontaneous mutation of the MecP2 gene and affects roughly 1:10,000 girls. We are learning so much about caring for a child with complex medical and educational needs, and caring for ourselves and our family at the same time. We could not do this as well without the...
I am the mother of six children, the youngest of whom has Down syndrome. My blog chronicles our family's experience having a baby with Down syndrome from the day of his birth to the present day.
