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Vicky .. Patient Expert

Anderson, South Carolina
Hi, I am a mom with two toddlers living with a recently diagnosed autoimmune disease called Sjogren's Syndrome. This is causing my kidneys to fail and I am currently in the process of looking for a live donor to give me the gift of life through transplant. I write about my experiences as a mom and a patient in hopes of helping others.

Deliciously Ella

United States
The idea of Deliciously Ella developed last year after I was diagnosed with a relatively unknown autoimmune disease, Postural Tachycardia Syndrome (POTs). At that point I faced some pretty interesting challenges. My entire nervous system had shut down, to the point that I was unable to walk between my bedroom and the kitchen without blacking out. As you can imagine this was a little frustrating,...
Communities: Healthy Cooking

Nicole M. Physical TherapistHealth Maven

St. Petersburg, Florida
Hi! I am grateful to be here! I have spent my professional career in the clinical/ medical field, as a Physical Therapist and in Healthcare Administration, I have my MPH as well. However, I did not devote my life to educating, empowering and inspiring others to advance their recovery (from any disease) and focus on optimal health until after my incredible challenge with Myasthenia Gravis,...

Patty B.

Granbury, Texas
I lost a kidney and have just recently found a path to take because a Doctor took the time to listen and realized I was not a hypochondriac or a big overly sensitive, stressed, depressed woman. (yes, lots of justified sarcasm). I was athletic, very lean and continued to stay fit by enjoying bike rides and playing recreational co-ed softball. However, when I started a family at 25, I had...
Goals: Lose weight

abbytuttut

manchester, United Kingdom
diagnosed with Autoimmune Hepatitis in June 2008, acquired  Diabetes whilst taking Prednisolone, and then R. Arthritis dwhilst taking Azathioprine.  Have Ascites due to Cirrhossis and had a P.E then fluid on my lungs.   Diagnosed with Sjorgrens syndrome in March 2009 although have had symptons of dry mouth and dry eyes for over 6 yrs None of it controlled or...
Communities: Dance, Biking, Walking , ...

scroachy

Neverland, California
 I am a 38 year old mother of 2 sons, and wife to my best friend of 21 years.  For 18 years I have been dealing with one auto immune disease after another, most of them damaging my endocrine system.  I have pituitary disease and pituitary micro adenomyomas and I have been struggling for the past 7 years to get a proper diagnosis and help from the medical community...
Communities: Walk-a-thon, Walking, Recreation , ...

lynb

California
I live in the UK and found this site by chance. Its fun, interesting and will hopefully give me the impetus to do more exercise.  I've had Crohn's disease for over 20 years. I also have  Chronic Fatigue Syndrome and an underactive thyroid gland. I have great support from my doctor and have just tested positive for Rheumatoid factor. I've read up on the subject but still don't...

Audrey K. Patient Expert

San Francisco, California
A 33 year old, hockey loving Canuck from Northern Ontario. In 2005, I was diagnosed with Rheumatoid Arthritis and Marfan's Syndrome which sparked an interest in research and sharing my experiences with an autoimmune disease and a connetive tissue disorder.

jeni

Tulsa, Oklahoma
I have autoimmune disease and I've been sick for 9 years.  My case is long and complicated. I'm here for research, support, and overall education on health issues.

Angie

Carson City, Nevada
Single mom trying to get by with autoimmune and other conditions challenging everything I do; or keeping me from doing what I want to be doing.