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Mindi

United States
As a mother of two healthy, busy boys I was taken back when my third child was diagnosed with a soup of congenital heart defects (CHD) while still in utero. His conditions include: double inlet left ventricle (DILV), Transposition of the Great Arteries (TGA), a large ASD which has now been modified to create a single atrium, pulmonary atresia, and dextrocardia. He has already undergone two open...
Communities: Children's Health

jessmith

Puyallup, Washington
Roger and Jesse Smith welcomed Lukas Scott into our lives in January of 2007. He came into this world with only one ventricle, but with incalculable lessons to teach those who love him. Luke was born with a congenital heart defect, diagnosed at 20 weeks in utero with a missing right ventricle. We knew even before he was born that he would face three open-heart surgeries. As of August 2007,...
Communities: Running, Children's Health

iniminnie

Lancaster, Pennsylvania
have a son 5 daughter 2 expecting girl due any day now who has heart defects bilaterl cleft palate tethered spine a swollen ventricle in her brain missing nose bone , middle part of her bran missing , hands are closed and heart is bigger than normal... but we r STILL giving her a chance AT LEAST to live... wish us luck n ALOT of prayer...

Amy B Patient Expert

United States
I am om to 4 wonderful children. My oldest son Philip was born healthy or so we thought. At the young age of 6 weeks old he has his first brain operations, followed by his second one at 6 months old and suffered a stroke. He has now had over 18 brain operations, a stroke, over 23 orthopedic operations, pseudotumor, shunts, slit ventricle syndrome, syrinx, Central nerve disorder. I am just a...
Communities: Brain Health

Mellanie H. Patient Expert

Decatur, Texas
Mellanie True Hills is CEO of StopAfib.org (http://www.StopAfib.org). As an atrial fibrillation patient, she lived in fear and knows what it’s like to suffer with afib. You can read her story at http://www.StopAfib.org/mellanie.cfm. Following her atrial fibrillation surgery in 2005, her mission became to help others find their own solutions to this afib...
Communities: Heart Health

Linda B. Facebook

California
I watched over Mom and Dad for many years as their health and memories began to fail. In 2005, they moved in with us. In December of last year, they moved into assisted living. In May of this year, Dad passed away. During all of this, I developed high blood pressure and high cholesterol, had occasional episodes of lone atrial fibrillation, and was diagnosed with CLL (chronic lymphocytic...
Communities: Caregiving

PJRyan

California
My husband, Steve S. Ryan, PhD, and I publish the website, Atrial Fibrillation: Resources for Patients,  (A-Fib.corn), a non-profit patient education site now in its 10th year. Steve was cured of his A-Fib in 1998, and shares all he has learned to help others find their cure too.

ShirJen

California
I have atrial fibrillation.  I have been on Pradaxa since May.  I had a cardioversion last month. So far it worked but have to stay on Pradaxa.  It scares me but it also scares me not to take it.  I lost my husband to cancer and a daughter to a stroke last year.  It has been a very difficult time.  Would like to hear from people with similar health problems and...

LadyDiana65

California
Grew up with the usual insecurities and lack of confidence most young girls do....although looking back @ my pics, I realize how much of it was 'in my head'. Otherwise, I have been healthy most of my life, other than some chronic pain issues I have been dealing with  since 1994. However,the past 7 years I have been having some health issues that when dealt with separately, seemed fairly...

Adam Freeman

United States
My name is Adam Freeman and I am the proud father of Kayleigh Freeman who was born at 28 weeks, but was diagnosed early on with severe IUGR (Intrauterine Growth Restriction) and was delieverd via emergency c-section (due to preeclampsia) the size of a 22 week old little girl. She weighed an amazing 1 pound - 1 ounce and defied all the odds against her to survive through the pregnancy and after...
Communities: Pregnancy & Fertility