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rohan k.

dehradun, India

lordog32

waterbury, Connecticut
My name is Lori and I reside in the Northeast. I was just diasgnosed with PKD September 8, 2009. I have to go to dialysis 3 times a week, and let's just say it's no fun! =( Although I do feel much better since being diasgnosed, I hate the diet restrictions, and they are constantly messing up my fistula in my arm, which in return is very painful for me. Hopefully by joining this site I could...

Rayne Mazur Patient Expert

Bellevue, Nebraska
My name is Rayne Mazur. I have had Crohn's disease since adolescence.  Along with the usual digestive problems, fistulas, skin rashes, aches and pains I have also experienced neurological damage, serious vitamin and iron deficiencies and have recently been diagnosed with a Hurthle cell mass on my Thyroid.  Life with Crohn's disease can be difficult and frustrating.  At times you...