I was born with Spina Bifida, Hydrocephalus and Arnold Chiari Malformation. I am allergic to latex as well as several medications. I have unspecified learning disabilities, presumably Nonverbal Learning Disability or Autism Spectrum Disorder.
I have 4 kids, I am currently working on Social Security Disabilty (finally at the court hearing level). I have been married for 14 1/2 years. My family has a plethora of genetic disorders. I have Arnold Chiari Malformation type I, Ehlers-Danlos Syndrome, Tethered Cord Syndrome, in 2001 I had a small stroke that I have fully recovered from, and now have a 1.8cm aneurysm on my right kidney....
Im 28, a wife and mother. Diagnosed with Budd-Chiari Syndrome in 2008 as well as a blood disorder that cause the clots. Trying to stay as healthy and happy through the ups and downs of liver disease and the bumpy road to a new liver.
I am a graphic designer dealing with the combined conditions of Chiari Malformation, Ehlers-Danlos Syndrome and Fibromyalgia. I am on a constant quest for information on how to manage my health conditions. I love sharing info. with others!
