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Wend B

Chaska, Minnesota
I have 4 kids, I am currently working on Social Security Disabilty (finally at the court hearing level). I have been married for 14 1/2 years. My family has a plethora of genetic disorders. I have Arnold Chiari Malformation type I, Ehlers-Danlos Syndrome, Tethered Cord Syndrome, in 2001 I had a small stroke that I have fully recovered from, and now have a 1.8cm aneurysm on my right kidney....

Tracey

California
I was born with Spina Bifida, Hydrocephalus and Arnold Chiari Malformation. I am allergic to latex as well as several medications. I have unspecified learning disabilities, presumably Nonverbal Learning Disability or Autism Spectrum Disorder.

Valerie A. Facebook

Evansville, Indiana
I am a 36 year old female, from Southern IN.  I have Arnold Chiari 1 Malformation, bilateral greater occipital neuralgia, fibromyalgia, chronic fatigue and anxiety. In 2008 I had a Stimulator (Medtronics) Implant for bilateral greater occipital neuralgia. I still suffer extreme pain, not just headaches, neck pain, muscle pain, joint pain, spasms in my head, my...

Eileen Gray Patient ExpertHealth Maven

Hopatcong, New Jersey
I have been suffering with Migraine disease since I was 13 years old. I went undiagnosed until I was about 24, when my Migraines got out of control. I found a wonderful site and forum, My Migraine Connection, where I met with one of the top patient advocates in the country, Miss Teri Robert. I read her book, Living Well with Migraine Disease and Headaches and it changed my life. I now have the...

COCKTAILDIZEAZ

Live Oak, Texas
Hi, my name is Erica and I live in San Antonio, TX. This blog is a mixture of personal experience and advice/guidance on what I've learned through reading, doctors, forums, etc. Hope you enjoy yourself and stay well! I feel as if I am a cocktail of pain, never know which body part is going to hurt at any given time. Possible Disorders: Fibromyalgia, Reynaud's Syndrome, Chiari Malformation....

Dr. Timothy Durnin Health Maven

Specialty: chiropractor (DC)
Lansing, Illinois
Communities: Exercise, Swimming, Martial Arts , ...

thematrix777 Patient ExpertHealth Maven

North Las Vegas, Nevada
I am disabled with RSD (Reflex Sympathetic Dystrophy) for several years now. It is a relatively unknown neurological condition that effects my entire sympathetic nervous system.  It is chronic, progressive and incurable. In addition, I have neuropathy, several inoperable back issues and other health problems I deal with on a daily basis. Goals I am Working On:   Goal #1: I am...

Christine from WI Patient Expert

Green Bay, Wisconsin
About 5 years ago I started having headaches when I would lie down that mysteriously dissapeared when I sat up. An MRI determined I had a neurological disorder called a Chiari Malformation. I tried many different prescription medications that did nothing for my pain before I was referred to a neurosurgeon. Two surgeries later I ended up experiencing the worst pain imaginable, wondering if I...
Communities: Chiari Malformation

Cole Twins

Appleton, Wisconsin
My name is Cindy Cole and I am a stay at home mom of 2 sets of boy/ girl twins ages 3.5 and 6.5. 3 out of my 4 children have chiari malformation and 2 of the 3 have had a decompression. My 3rd chiari child is being followed with meds at this point. I also have 3 children with craniosynostosis.
Communities: Chiari Malformation