Ava~Hope for Congenital Diaphragmatic Hernia.
I am passionate about teaching parents how to advocate for their child's health. My third daughter Ava was born with Congenital Diaphragmatic Hernia. CDH is when (inside of the womb) the diaphragm does not form properly. The abdominal organs move up into the chest cavity, compromising the heart and lungs. Half of all babies born with this birth...
Occupation: Training Developer/Writer
Education: B.A. English
My meandering road through life includes three hilarious little boys (Alex, Zach, and Harrison). My oldest, Alex, has Autism Spectrum Disorder (ASD, autism, PDD-NOS).
This blog is a collection of our adventures and my thoughts about life in general. It’s also tribute to Alex my survivor, nay, my...
Roger and Jesse Smith welcomed Lukas Scott into our lives in January of 2007. He came into this world with only one ventricle, but with incalculable lessons to teach those who love him.
Luke was born with a congenital heart defect, diagnosed at 20 weeks in utero with a missing right ventricle. We knew even before he was born that he would face three open-heart surgeries. As of August 2007,...
I'm a 37 year old Mom to four boys and two girls. My youngest son was born with Down Syndrome and the many medical issues that come along with it. My lil man has congenital heart disease, lung disease, GI problems. He's survived heart failure, open heart surgery, a diaphragmatic hernia that collapsed his lungs, and he is currently battling failure to thrive brought on by the toll it's all taken...
