I am still to this day experiencing varying degrees of post traumatic stress disorder from this experience and that is on top of my already surviving thirteen years of being completely disabled from CFIDS. So I now KNOW the 'fatigue' part of the title of this illness needs to change for the benefit of everyone living with this illness along with the friends and loved ones that support us along our journey.

The denial of disability benefits has since been reversed along with my receiving all back benefits from the time I first applied but the living HELL I was put through for over two years of fighting for my very right to survive as a disabled person left me injured beyond what I ever would have thought could possibly happen.

Even when my CFIDS disability was reviewed for benefits the medical evaluator when I was telling her the name of my disability said, "FATIGUE? OH PLEASE..... Fatigue is NOT an illness!!!" This word caused this medical evaluator to misunderstand my TRUE medical condition and caused her to initially deny my disability claim.